@vipp
excessive and productive cough of various colors
frequent lung infections including staph, pseudonomas , 3 x per year
MAC
body aches
have one 508DEL mutation
medium high but not quite high enough sweat chloride levels for the diagnosis of CF
low body weight
lethargy-fatigue
difficulty breathing
bronchiectasis
night sweats
constipation
osteopenia
when on trikafta clinical trial last year my sweat chlorides went way down and my quality of life improved 95% almost immediatly within 1 day .
when I went off the clinical trial trikafta I immediately had all of the symptoms come back, especially the excessive cough and green phlegm
nieces daughter has CF diagnosed as a baby.
I don't have the stomach issues related to the enzyme most cf patients have.
airway clearance takes so much time. I almost wonder some times if I would be better off not doing it, but then do realize it helps make mucus thinner to come up but then it comes up thorughout the day and not when I want it to come up.
full time job