← Return to Living with colorectal cancer - Meet others & come say hi

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@jrsmarkey

Hi I had stage 3 colorectal cancer in March of 2016, with 29 days of radiation and chemo. My resection of 1 foot colon removed July 2016. I had a bowel blocakage August 2016 and had emergency surgery to remove scar tissue and blockage and then a reversal of my illesostomy in September of 2016. My question is after all of this and almost two years out now I still have 1 day a week where I feel colon spasms along with clustering and after one to two days of this I am just exhausted. It resembles Krohnes disease and I wanted to know if anyone else had similar issues and what they do when issues like this happen?

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Replies to "Hi I had stage 3 colorectal cancer in March of 2016, with 29 days of radiation..."

Hi @jrsmarkey and welcome to Connect. I'm tagging a few other members - @brenz @mikendale @jinatolle @memorae12 - of the Colorectal cancer group to see if they have experienced colon spasms and clustering.

While we wait for others to respond, jrsmarkey, can you tell me a bit more about the spasms? You mention that they happen about once a week. Have you been able to determine what triggers them or if there's a pattern associated with them? Have you doctors suggested what might be the cause?

Most of the time it’s due to eating something that is overly spicy. My Doctors just say go back to the Bratty diet until you get some relief. Really tired of eating the blandest things on earth. Why even bother eating if you have to eat that way! I have tried taking CBD oil and that seems to help with a lot of my symptoms. I feel inflammation is to blame for most of my issues.