← Return to Living with colorectal cancer - Meet others & come say hi

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@jinatolle

Hi everyone! I was diagnosed stage 4 in July of 2016. Since my diagnosis, I’ve been seen at MD Anderson, had an orange sized primary tumor in my colon removed and 16 lymph nodes, had a port placed, had my spleen and gall bladder removed, had a hepatic artery pump placed at UPMC in Pittsburgh (to help with a football sized tumor in my liver), I had my port removed, the hepatic pump removed and so far dominated 27 rounds of chemo (avastin, oxyoplatin, and 5FU...different combinations at different times), and currently battling two nodules in my right lung.

I am a mom to a 15 year old and a ten year old and I am married to the love of my life. I was given a terrible life expectancy at my initial oncology appointment, but I told my doctor I would be her patient a long, LONG time whether she liked it or not! Ha! I asked her at the same appointment what the difference maker would be in tackling this disease: nutrition? hydration? Exercise? Rest? Do you know what she said? ATTITUDE!

I am praying each of you are winning the fight against this monster! I have never joined a chat forum so I’m anxious to see how we can all help and encourage each other!! Here’s to kicking this in the tail!!

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Replies to "Hi everyone! I was diagnosed stage 4 in July of 2016. Since my diagnosis, I’ve been..."

@jinatolle Welcome and thank you for posting a very positive and uplifting story. You also came to the best site. I was diagnosed with cecum.cancer and follicular lymphoma at the same time almost 2 1/2 yrs ago.
A great support team and attitude is what it takes to keep going agreed.

We are all.here for each other. So anytime you would like to chat please feel free to share.

My husband was diagnosed stage 4 over 6.5 years ago with cancer of colon, liver and eventually to lungs, he had piece of colon removed 3/4 of his liver removed that had grown back and then for his lungs he had cyber knife(a very pinpointed radiation ) to more than 8 tumors in the lungs. He had chemo for 6 months then another round via Xelida (pill form of chemo ) for a few months. He has a great attitude and we have traveled many places internationally during this period enjoying life. His next step is genomic testing to see if he qualifies for keytruda which is an immunotherapy that has been apprived for colon cancer. Hope this helps someone and continue with that great attitude.