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PMR and Flu Vaccine

Polymyalgia Rheumatica (PMR) | Last Active: Oct 20 3:00pm | Replies (91)

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I know that we all puzzle over how we were unlucky enough to get PMR, especially since many of us had never even heard of it before we were diagnosed. I was a relatively healthy 62 year old, who annually got vaccinated for the flu, and the year I was diagnosed was no exception. I also received the COVID vaccine but am reluctant to blame my vaccines for my diagnosis. I am African American with 6% Norwegian in my DNA —who would think that was enough to matter but here I am 3 years later still trying to resolve PMR. I responded immediately to prednisone but the minute I began to taper my CRP/SED RATE would go right back up. Thankfully, Actemra has been a game changer for me. It is strange that we ended up in this spot but I hope that we are all finding ways to end the journey with PMR. May we all have more compassion for others dealing with daily pain. I know I will. Blessings! ❤️

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@sandiw77 Loved your post and attitude. We all are on different paths and that compassion for the pain of others is so important! I wonder if someday scientists will discover ways to separate PMR patients into different subgroups, which then may respond to specific treatments. Maybe that’s why some drugs work well for some but not others - we are different variations of the same disease.