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Bladder conditions support: Introduce yourself and connect
Bladder Conditions | Last Active: Apr 20 8:10pm | Replies (47)Comment receiving replies
Welcome to the new support group dedicated to bladder conditions. I’d love to hear from some of you who have shared your experiences before: @tom1984, @vickij1956, @pml, @ladybear57, @louisejewell, @ainsleigh, @glinda47, @lucy155, @dks, @josieglow, @nonnahelen, @dbamos1945, @justjane8, @mmorley, @sparkyd1, @jjb1225, @robtliz, @gwladj76, @ggr, @collenp, @minischnauzer, @jdbjsmith, @cavman9, @unvecchiouomo, @mirsy, @yanina
Check it out. There's new group on Mayo Clinic Connect dedicated to bladder conditions (https://connect.mayoclinic.org/group/bladder-conditions/). Your discussions have been moved to this new group. Be sure to follow the group to get notified of new posts.
So let’s get connected. Take a moment and introduce yourself. If you’ve been managing a bladder condition, what’s one tip or coping strategy that has helped you most? And if you’re newer to this journey, what’s a question you’d like to ask the group?
Replies to "Welcome to the new support group dedicated to bladder conditions. I’d love to hear from some..."
@klp My name is Rochelle, I am 66 years old. After two years of every test you can think of to find out why I have constant pain/burning in my pelvic area I'm about at the end of my rope. I've been told I have hypertonic pelvic floor disorder-looks like I hold my stress there-it doesn't relax..it oftentimes feels as though I have an active UTI even when I don't. My bladder doesn't empty completely, I have to self cath. once per day now. Urologist has brought up the Interstim implant, I am very leary about it. I don't feel like Dr.s understand or know what to do, I am constantly researching looking for answers, constantly fearful that I have cancer that is being overlooked. Dropped weight for no reason, and appetite is nothing like it used to be. It's so hard to be positive about life. Hoping to meet some kindred spirits who can relate and maybe offer some advise.
@klp
Hello my name is CherylLouise I have had ongoing bladder issues for many years causing me discomfort, UTI's & leakage.
During the Covid Pandemic I suffered a severe prolapse of my bladder/part bowel causing me more major issues with my bladder. I was diagnosed by my GP in early 2022 but was unable to see a gynaecologist for 8 months unfortunately this caused my prolapse to worsen & my bladder to weaken causing more discomfort, UTI's & leakage. The operation was successful but it did not cure my bladder problems.
In February 2025 I had a prolapse repair of the bladder a successful operation, thankfully. Once again my UTI issues came back but my leakage issue has definitely improved since the operation.
I have been taking a 6 months course of low dose antibiotics since mid July 2025 and will finish the course mid January 2026 this journey has been a successful one so far as I haven't had a UTI since starting the antibiotics fingers crossed I never have another one!
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I am an 82 year old male. I have to urinate anywhere from 4 to 6 times a night. Medication has not helped. I am undergoing an InterStim test period starting next week (11/4/2025), lasting for a week. If that is successful, I will likely have the InterStim implant. The major reason being that botox injections appear to work well, but only last six months, and I don’t want to repeat the injections that often, especially as I get (even) older. Medtronic claims the battery will last for 12 years, and that I can still have an MRI done after the implant.
I am looking for advice on what to do. Should I try the botox injections before I commit to the implant?
Thanks for any advice.