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Neobladder or Ileal Conduit, unsure

Bladder Cancer | Last Active: Oct 8, 2025 | Replies (20)

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Profile picture for 141emp @141emp

My radical cystectomy and hysterectomy was done robotically. Six small incisions and literally no pain. I was discharged with Tylenol if needed after four days in the hospital. I even asked my surgeon the day after the operation if he really removed everything we had talked about because I felt great! I chose the conduit for a number of reasons. Prior to my TRBT, I had become increasingly incontinent with painful spasms, not sleeping for more than an hour at a time for two months before the TURBT removed a 3 cm tumor. Everything got worse after the Turbt,I couldn’t imagine continuing with that after the cystectomy. My new surgeon explained the pros/cons and I felt conduit was the best solution for me. I don’t regret it. Attaching an overnight urine collection bag allows me to sleep 8 hours! Changing the bag twice a week is easy. I have traveled by air and was working out several times a week until my cancer came back this year and I started treatment again. I had an easy cystectomy recovery and was ready for necessary chemo in 6 weeks. The only problem I’ve had with the bag is very recent with a rash under the device that is being treated with a foam applied during changes. My care team also works with phenomenal ostomy nurses who were a tremendous help.

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Replies to "My radical cystectomy and hysterectomy was done robotically. Six small incisions and literally no pain. I..."

@141emp , also strongly advocate use of Signatera test. Peace of mind and early warning if cancer is back.

@141emp I am glad to read of your experience. I am sharing parts of your notes with my husband, who is worried about my surgery in less than two weeks at Mayo Jax