Thank you travelgirl , what was the original size of the polyp that they analysed twice as precancerous , this is really scary, I am learning so much .

@hrant Underneath an Ulcer in my Cecum was a Flat Polyp. I think they said it was 5mm. The third Dr. stated it was 15mm. This was over a 3 month time period. Can you share what you or a loved has been through? Also I can say first hand. Trying to guess and put the puzzle pieces together of an illness by reading online. Well it will make you freak out. Cause if your like me? If I start reading enough about prostrate cancer, before I know it, I will swear I have prostate cancer and I don't even have a prostrate. LOL.. The best thing you can do is seek out treatments from a medical facility that has a highly rated GI/ Colorectal cancer departments.

travelgirl
You are very funny . My situation is very different , I am very proactive and wanting to learn and be ready for what is coming at me .
At 59 years old and last year I discovered that I have lynch syndrome ( MSH6 ) with no symptom at all , so now I am going to a colonoscopy each year and wanting to do additional test beyond the recommendations . I live very close to UCLA in los Angeles and they are good , but the system is made to cure disease after you have it not get you ready for what is coming . That is why I want to learn as much as possible from the experiences of others so I will be ready . there is a saying that I read long time ago : "peace is the only time to prepare for war " . I do not want to learn all this when I am fighting for my life . I am going to be as ready as I can .
That is why I was chocked by your story , I printed it out to keep in my files .
5 people died of lynch from my mother's side . we knew of something wrong in the family but we had no access or heard of genetic testing , then a cousin from Canada called me and told me that she had cancer and after testing she urged my brother and i to test . my brother did and he does not have it . I put it aside and forgot about it . last year I did a colonoscopy , they found 2 polyps 2 and 3 mm
they said it was precancerous with no dysplasia , that woke me up and I tested , boom I had it .
now all I do is educate myself , I love it . it is so interesting to learn how our bodies works .
Take care , Hrant

@hrant Thank you for sharing.

I also was tested for Lynch Syndrome. Believe it or not I am NOT Lynch positive. But you would suspect I am. Which is odd. My Mom died from Endometriosis cancer. Plus in my family tree there is Cecum cancer, Colon cancer, Bladder cancer and breast cancers. Then me with the double trouble of cancers.

You are correct we are taught to treat the illness instead of being proactive. I think that was the mentality we grew up with. Tomorrow I am headed to a Dermatologist's office to get checked over for skin cancer. We truly need to be proactive in our health if we want to ward off illnesses.

Also, it is my understanding that if a person is Lynch positive, you need a team of Dr.'s to fine tooth comb over your body. Looking for anything 1 Minuscule out of place. That way they can zap it before it proposes a problem.

In a sense I got lucky finding both of my cancers early. Now I am watched like a hawk and what the Dr.'s aren't watching like a hawk I am. We need to be one step ahead, just like you said with our health.

I wish you the best. Take care, and don't forget to Pop on and visit. We would love to all hear what your research finds. 🙂

travelgirl
yes you are very lucky , About the genetic testing , maybe someone has made a mistake over there too , I even read that some proteins that are around the genes have the power to switch the genes on and off ( nobody knows why and when ), some people never get cancer even though they are lynch positive . there are a lot of unknowns in this field .
Something came to my mind for you if I may say it , even though you are not lynch positive , why don't you treat yourself as it was positive and just fallow all the testing recommendations that apply to you . it will be a little expensive depending on your insurance plan but I decided when ever my plan says no I do it anyway and pay out of pocket . I am going beyond the NCCN guidelines . All of this including my yearly health insurance and all tests are roughly costing $ 10 K per year , which is fine with me .
maybe you want to consider that .
Take care , Hrant.

@hrant and @travelgirl I'm loving this exchange that you're having.
I'm joining in to let you know about the discussion about Lynch Syndrome that is happening in the Cancer group here:
- Lynch Syndrome http://mayocl.in/2oVneMV

Hrant, in that discussion you'll meet others who tested positive.
Colorectal screening is so important. At my last colonoscopy they found a pre-cancerous polyp too. I want to stop colon cancer in its tracks. My dad waited too long before getting checked.
I invite you both to share your screening experiences here:
- What's your colorectal cancer screening story? http://mayocl.in/2mKI78m