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Acoustic Neuroma: Auditory symptoms are overwhelming

Posted by bobbimck @bobbimck, Oct 3, 2024

Was diagnosed in June 2024. The auditory symptoms are overwhelming. I would be grateful to read others experiences and advice. Thanks.

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jasonl1012 | @jasonl1012 | Sep 26 6:30am
In reply to @maniacjc "I had a surgery 2 years ago, they were only able to remove a little bit..." + (show)
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I had a surgery 2 years ago, they were only able to remove a little bit as the rest was covered in nerves and wasn’t able to be removed. I lost my hearing and knew in advance. Plan was a cochlear implant but it was damaged by the surgery. I had a bone anchor hearing aide put in but I don’t recommend it if you have normal hearing in your other ear. It’s just a tinny mess. If you can’t hear it’s a miracle. So far I have permanent dry eye on the same side. I then went to oncology where they did six weeks of radiation and after six months it showed it’s grown a little. Huge balance issues, constant head pain, my two hobbies have suffered, can’t really play guitar like I used too and my golf game has added 20 strokes to my score, I guess I’m glad I’m here not sure what’s next I feel for my wife!

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@maniacjc that’s a lot you’re going through. I hope it improves for you. You’d probably still beat me at golf! 😂

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Dolly Jane | @dollyjaneprenzel | Sep 26 4:13pm
In reply to @tamietann "Glad I found this group. I experienced the fullness, tinnitus, vertigo, dizziness. MRI is a week..." + (show)
Profile picture for tamietann @tamietann

Glad I found this group. I experienced the fullness, tinnitus, vertigo, dizziness. MRI is a week from today. In the meantime, prednizone shots in ear just in case it's not the tumor. But so far, the shots are not working. I'm very nervous about the MRI and the possible results. It seems like a lot is unknown with this type of tumor.

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@tamietann - my MRI is Monday. Scared but will be glad to get it over with. If the outcome is not good, at least I’ll know where I stand. I am tired of pain in my head.

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Randy Shields | @randallshields56 | Sep 27 12:22pm
In reply to @tamietann "Glad I found this group. I experienced the fullness, tinnitus, vertigo, dizziness. MRI is a week..." + (show)
Profile picture for tamietann @tamietann

Glad I found this group. I experienced the fullness, tinnitus, vertigo, dizziness. MRI is a week from today. In the meantime, prednizone shots in ear just in case it's not the tumor. But so far, the shots are not working. I'm very nervous about the MRI and the possible results. It seems like a lot is unknown with this type of tumor.

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welcome,
don't see things as they might be it, can drive you crazy. try less to
worry and pick up something you enjoy and do it.
waiting for information sucks but till you know for sure occupy your mind,
join a prayer group and get some joy in know there, are some really big
groups out there and smile, another day to say hi and I love you to someone
special.
have a blessed day.

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