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Psoriatic Arthritis: How do you manage PA and flares?

Autoimmune Diseases | Last Active: Sep 23 11:36am | Replies (128)

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@joanelle77

Hello all, I'm new. I have Psoriatic Arthritis. I look foward to getting to know you!

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Replies to "Hello all, I'm new. I have Psoriatic Arthritis. I look foward to getting to know you!"

@jpenner68 I agree there just had inj.in back 5days I was miserable and still 3weeks later still hurting .

Hi, @joanelle77 -- I've merged your
discussion on psoriatic arthritis with this one @johnbishop suggested, in hopes you can meet some of the members here like @marylou70 @lemdjm @peach414144 @oldkarl @kozlo52 and others. Hoping they might have some insights on dealing with this condition while being unable to take either opioids or steroids. Wondering if you could tell us more about your intolerance of steroids and what's happened with them, @joanelle77?

@jpenner68 -- I notice that you were typing in ALL CAPS in a couple posts. Just wanted to mention that we advise against using all caps in the community guidelines https://connect.mayoclinic.org/page/about-connect/tab/community-guidelines/. The reason is that all caps are considered shouting in online communications. However, a few members on Connect have to or prefer to use all caps due to typing difficulties (sore hands) or other medical issues. Is that why you use all caps sometimes?

It sounds like you've had a bad time with side effects from steroids, @jpenner68. Will you share a bit about your experiences with them?

Sorry if sometimes I write with capital letters. There are times I do want to emphathise and then there are times I do not realize I an writing with capital letters. I am slowly going blind as I have mentioned before in some of my posts. This has been mentioned to me at least three times. I am sorry but sometimes I cannot help this. I feel as though I am being hurt. Deliberatly or unknowingly it still hurts me. If you want me to stop being a part of the group then say it directly to me. And then shame on you. I am sorry if I hurt any one's feelings. (Notice I have not mentioned the persons name as I do not want to hurt anyone.) Sorry for this post and love to all. Peach

No worries, @peach414144 -- I was just letting some new members know about our request about all caps, since they may not know about that yet. It was not directed to you, and apologies if this caused any hurt. It was not meant to be hurtful to anyone, and we ask about use of all caps as sometimes members have a medical reason for doing so, which we honor. You are a long-time member, and we value your participation and really want you to continue to be a part of the community. Thanks for all the help you offer, @peach414144, to members with psoriatic arthritis and many other health conditions.

Hello @joanelle77 and @jpenner68

I am glad that you joined this discussion on psoriatic arthritis. By reading these posts, you will meet lots of folks who are also dealing with this disorder. @peach414144 is one of our faithful members who posts quite frequently and she is very open to helping others on Connect!

I look forward to getting to know you both better and understanding what your concerns and questions might be regarding this type of arthritis.

If you care to share, what is the most difficult symptom that you deal with?

Teresa

Hello, dealing with the most difficult symptoms of psoriatic arthritis is a hard one to answer because: even though one of the symptoms might be considered a small one: It is not because of the many degrees of each small or large attack. And when the one attack is over another one comes into being even before the original one might still be going on. It has a mind of it's own. When the rash is leaving you smile but all of a sudden one of the joints, ankle, knee, shoulder knee or even the neck starts to hurt, then swells and here we go again. Sometimes there are no episodes for years. With me, I think a lot of it is from anguish, fear, ptsd, bad dreams and other conditions of the same nature. I usually say to myself "thank you god it is not cancer." If any one needs to know more I most certainly do like to help so please ask me whatever you would like to know. Love to all Peach

Thank you Peach

@peach414144 -- YOU ARE A REAL PEACH! I love your value add when you post. I especially like how you post from the heart a lot and are so encouraging to new members here on Connect (old ones like me too!). I sometimes use all caps for emphasis or in titles but I try not to write everything in caps mostly because I think it's a little harder to read since most writing is lower case with the first letter in caps and I think we are used to it. So, YES you are a valuable and important part of Connect. We all are. Every member adds value and brings a unique experience. Thank you for being here on Connect.

John

Thank you John and everyone.