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@ucla2025 there is a world of PC info on the internet..I refer you to Dr mark Scholz.. https://pcri.org/mark-scholz
He has many You Tube videos which describe most all the serious prostate cancers..Gleason scores, metastic disease treatments etc...ADT Therapies , radiation treatments and chemo for very advanced disease...
Dr mark exudes hope and positive treatment options and NEVER says anyone is a goner...you can check your doctor's recomendation treatments against Dr mark's ..in very general terms...if it is totally different or you do not feel confident or not seeing PSA drop, then maybe a new oncology group is in order.
Lots of treatment options out there now...you are not alone...but having the right oncologist for you is imperative.
And Yes, lots of contradictory stuff about treatment in general.. for ex: Alpha Lipoic Acid...it helps destroy PC cell replication.. but should you take the supplement during radiation ?? some say yes, some no..same with Vitamin C...also, I was put on Erleada and Orgovyx early and couldnt tolerate the Erleada...many dont tolerate it well..so I had ask for Nubeqa..was told that "yea its ( Nubeqa) easier on most guys" so I thought " well why in F*** did you put me on Erleada then..it nearly made me crazy..???
Replies to "@ucla2025 there is a world of PC info on the internet..I refer you to Dr mark..."
@xahnegrey40 Yep we specifically asked for Orgovyx and Nubeqa due to concerns about side effects.
@xahnegrey40 ,
Yeah, PCRI has some great videos. Dr. Scholz comes across as a strait-shooter and covers almost anything you're wondering about.
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@xahnegrey40 Hi thanks for your response. I am familiar with Dr. Schloz and have seen many of his videos. We are receiving state of the art care at UCLA and have confidence in our doctors, It’s serious business but we are on top of it. I don’t understand why people on this group keep criticizing what we are going through and believe that they know better than us what to do. I love Dr. Scholz outlook and encouragement, he’s a great inspiration. I never believed we were alone or that my husband is a “goner”. But some people in this group seem to think so. I don’t get it. We have a great UCLA oncologist.