@jenn1969 I had hyperreflexia too because of mild spinal cord compression. I had diagrammed my pain on a body drawing of a dermatome map and there was a dot for pain in every dermatome. This is when surgeon #5 announced I must have an inflammatory condition something like MS for example and it scared him right out of helping me. Not true of course. I found that medical literature because the term "funicular pain" was a term in a paper co-authored by a Mayo surgeon I was researching. I knew I had found a doctor who would understand my condition. He is an excellent surgeon, and also kind and compassionate. If you need another opinion and can go to Mayo Rochester, his name is Jeremy Fogelson. He is a spine deformity expert.
https://www.mayoclinic.org/biographies/fogelson-jeremy-l-m-d/bio-20055624
Yes it is so frustrating to be in pain and get a run around. You wonder how many hoops you need to jump through. I was always looking for another surgeon to consult in case things didn't work out. Mayo was the 6th consult after 2 years trying to get help while my condition worsened. I wish I had gone there first. If that may be an option for you, there is always a wait for the good surgeons, so apply as soon as you can. Check if they take your insurance first.