Muscle spasms on lower back

Posted by asolidrock @asolidrock, Sep 24 7:41pm

Has anyone that has had PC metastatic to pelvis has muscle spasm. I had then when I was in the hospital with low wbc on I tell the pain shot through my stomach; thought I was having a heart attack. Dr put a salompas patch on it saying it was muscle spasm.

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I can't answer directly, but I certainly had that with PCa metastatic to my middle spine. That (and the shooting pains between my spine and shoulder blade) were the first indication something was wrong.

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Profile picture for northoftheborder @northoftheborder

I can't answer directly, but I certainly had that with PCa metastatic to my middle spine. That (and the shooting pains between my spine and shoulder blade) were the first indication something was wrong.

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@northoftheborder so where are you now with that ?? did they do radiation or ADT/Chemo or all ? are you doing better !? I hope so ..

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Profile picture for northoftheborder @northoftheborder

I can't answer directly, but I certainly had that with PCa metastatic to my middle spine. That (and the shooting pains between my spine and shoulder blade) were the first indication something was wrong.

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@northofthebordewell thanks anyway. Hope you are doing ok.

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Profile picture for xahnegrey40 @xahnegrey40

@northoftheborder so where are you now with that ?? did they do radiation or ADT/Chemo or all ? are you doing better !? I hope so ..

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Yes just had my second chemo. My PET scan was better so my oncologist reduced the amount of chemo. I'm supposed to have 6 chemo treatments. Thanks so much for asking. So how are you doing .

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Profile picture for xahnegrey40 @xahnegrey40

@northoftheborder so where are you now with that ?? did they do radiation or ADT/Chemo or all ? are you doing better !? I hope so ..

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@xahnegrey40 I had emergency debulking surgery in 2021 (the tumour rapidly compressed my spine and paralysed me from the ribs down), followed by radiation to the surgery/tumour site and radiation to the prostate a few months later. I've been on ADT + Apalutamide for four years, and they're still keeping me in remission. I also got a lot of my mobility and sensation back over 18 months of recovery, rehab, and physio (not all, but enough to live a good life).

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Profile picture for asolidrock @asolidrock

Yes just had my second chemo. My PET scan was better so my oncologist reduced the amount of chemo. I'm supposed to have 6 chemo treatments. Thanks so much for asking. So how are you doing .

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@asolidrock thanks for your response:
I am starting radiation monday- been on orgovyx ( and now nubeqa too) for 3 months.. PSA went from 70 down to .05 with just orgovyx in 7 weeks..so am very stoked about that ..maybe I will live a few more yrs !!

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Profile picture for northoftheborder @northoftheborder

@xahnegrey40 I had emergency debulking surgery in 2021 (the tumour rapidly compressed my spine and paralysed me from the ribs down), followed by radiation to the surgery/tumour site and radiation to the prostate a few months later. I've been on ADT + Apalutamide for four years, and they're still keeping me in remission. I also got a lot of my mobility and sensation back over 18 months of recovery, rehab, and physio (not all, but enough to live a good life).

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Well I'm happy for you and thankfull for God's goodness to you. Surely every day a gift and through all my PC u learn what's most important. I hope you continue to get stronger 🙏

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Profile picture for xahnegrey40 @xahnegrey40

@asolidrock thanks for your response:
I am starting radiation monday- been on orgovyx ( and now nubeqa too) for 3 months.. PSA went from 70 down to .05 with just orgovyx in 7 weeks..so am very stoked about that ..maybe I will live a few more yrs !!

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All I got to say is Praise the Lord. Mine was 56 at the beginning then after eligard shot went to 19 after adding docetaxel and first chemo psa was 0.16 it's so good to hear that men on here are doing good;

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Profile picture for asolidrock @asolidrock

Yes just had my second chemo. My PET scan was better so my oncologist reduced the amount of chemo. I'm supposed to have 6 chemo treatments. Thanks so much for asking. So how are you doing .

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@asolidrock
How is the chemo side effect. The Dr told me it is my next treatment in line and I am very apprehensive about it as I have known others that have had very negative issues. He said it is important to do before Pluvicto.

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Profile picture for duberdicus @duberdicus

@asolidrock
How is the chemo side effect. The Dr told me it is my next treatment in line and I am very apprehensive about it as I have known others that have had very negative issues. He said it is important to do before Pluvicto.

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Well other than my wbc bottoming out I've had a very sore tongue and my taste has changed. I still have to go to the bathroom a whole bunch; which is probably the worst side effect if it has to do with the chemo. I'm on docetaxel every 3 was. Hope this helps

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