I’d like to meet others with ulcerative colitis

Collagenous colitis is also called microscopic colitis; it is an autoimmune disease that is only visible by examining biopsy samples under a microscope. It is more common with those of us with celiac disease. I try to manage mine with diet and de stressing. Everyone is different in what works, I eat yogurt and kombucha for probiotics, also some psyllium husk/water (soluble fiber feeds "friendly" bacteria and insoluble adds bulk, and may also bind with bile that can irritate the colon. ) As always, check with a doctor before you make a big change in diet or pills. https://my.clevelandclinic.org/health/diseases/17227-microscopic-colitis https://www.hopkinsmedicine.org/health/wellness-and-prevention/foods-for-diverticulosis-and-diverticulitis

I'm 84 years, I have had this since my early 30's. Had more coloniscopies than I can remember, 1 every year till my 60's, I said no more, did it every 5 years till 80
I'm finished, if I get cancer so let it b.
If they didn't find any polyps don't have 1 every year .no cure for it, you just manage it with meds. I hav a flare maybe 3 or 4 times a year
And manage it with prednisone and. Sulfaasalazone. Good luck.
Sorry you hav this curse.

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Hi @golfngal - I believe I had three colonoscopies in one year, after one of the "polyps" removed at my first ever one turned out to be neuroendocrine cancer. I thought that was a lot of colonoscopies, but sounds like you are the true veteran expert. 🙂 (The end of the story: After much testing, I have no cancer left in my body. I will have another colonoscopy every 2-3 years for now).

You mentioned you have 3 or 4 ulcerative colitis flares per year and manage it with sulfasalazine and prednisone. For how long do you have to be on these medications each time? Do they help tame the flare quickly?