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I’d like to meet others with ulcerative colitis

Inflammatory Bowel Disease (IBD) | Last Active: Sep 25 5:34pm | Replies (74)
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Profile picture for golfngal @golfngal

I'm 84 years, I have had this since my early 30's. Had more coloniscopies than I can remember, 1 every year till my 60's, I said no more, did it every 5 years till 80
I'm finished, if I get cancer so let it b.
If they didn't find any polyps don't have 1 every year .no cure for it, you just manage it with meds. I hav a flare maybe 3 or 4 times a year
And manage it with prednisone and. Sulfaasalazone. Good luck.
Sorry you hav this curse.

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Replies to "I'm 84 years, I have had this since my early 30's. Had more coloniscopies than I..."
Lisa Lucier, Moderator | @lisalucier | Sep 25 4:51pm

Hi @golfngal - I believe I had three colonoscopies in one year, after one of the "polyps" removed at my first ever one turned out to be neuroendocrine cancer. I thought that was a lot of colonoscopies, but sounds like you are the true veteran expert. 🙂 (The end of the story: After much testing, I have no cancer left in my body. I will have another colonoscopy every 2-3 years for now).

You mentioned you have 3 or 4 ulcerative colitis flares per year and manage it with sulfasalazine and prednisone. For how long do you have to be on these medications each time? Do they help tame the flare quickly?

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