Neurosurgeon visit looking for options for scoliosis

Posted by srquser @srquser, Sep 24 12:37pm

I guess Yin & Yang.
Went to a neurosurgeon to look into options for my Scoliosis, affecting L3-L4, L4-L5, and L5-S1. Looked at the MRI, did a physical exam, and said that there is nothing he could do. He pointed out that surgery, such as a Laminectomy, or even spacers, using minimally invasive techniques, would not be advisable given my age (late 70's) and the extent of the scoliosis. He basically said I should continue doing what I am doing - exercises, acupuncture and steroid injections - since they seem to be somewhat effective, lessening my pain from tear inducing excruciating pain, to just "ouch", and almost no pain at the start of the day which increases as the day goes on. We'll see how that goes though once I restart my docent work, where I will be on my feet for about 4 hours.
BUT - we did have a nice chat about baseball as we grew up in same neighborhood & fans of same teams(Go Phillies!).

Interested in more discussions like this? Go to the Spine Health Support Group.

Are you considering a second opinion?

REPLY

@srquser May I offer a suggestion? According to my physical therapist, a technique called myofascial release may help scoliosis somewhat. In other patients, it has been able to help with lessening a spine curvature. If you have tightness in the muscles and fascia in your body, it may be pulling your spine into a scoliosis curvature to a degree. It won't replace a spine deformity surgeon for correcting more advanced deformity. There are many reasons for scoliosis and spine deformities, but I have also known patients who were seeing a therapist for regular work in helping their scoliosis who were getting some curvature correction. Problems of body alignment may also cause pain as you probably know. This is just physical therapy and stretching.

Here is our discussion where you can learn more.

Neuropathy - "Myofascial Release Therapy (MFR) for treating compression and pain"
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
There is a provider search at http://mfrtherapists.com/

REPLY

@srquser, you may also be interested in these discussions related to adult scoliosis https://connect.mayoclinic.org/group/spine-health/?search=scoliosis&index=discussions

REPLY

@srquser Hello! I hope you will get a second opinion. Unless there are other reasons why he thinks you shouldn’t have surgery. It is a tough surgery to heal from. Do you have someone who can help you out for a few months after your surgery?
Best Sherry

REPLY

Regarding a 2nd opinion - this was actually my 2nd opinion. Initially saw an Orthopedic surgeon who immediately said he'd schedule surgery, but better to try other things first. I did - with inconsistent results. But as of now, I'll sticj with these other things - I think I need to add massage to my list.

REPLY

I'm in early mid 70s and dealing with same L-3 thru S-1 scoliosis, stenosis, degenerative osteoarthritis. Spine specialist suggested 2 options to relieve varying extreme to moderate pain. Most extreme is fusing the 3 areas, but he suggested I try bilateral nerve ablation of facet joints and referred me to pain specialist. Insurance requires 2 "diagnostic block injections" to determine if successful (temporary relief only). I just had 2nd test last week and will be proceeding within a month with nerve ablations. Current use of Aleve, occasional codeine with acetaminophen and wear back support brace when on my feet a lot.

REPLY

I also have scoliosis with a 33 degree curvature and severe kyphosis. I am 69 years old with Parkinson's Disease.
I am planning to try a spine stimulator for the pain. Any feedback would be welcome.

REPLY
Profile picture for kathy2hilltop @kathy2hilltop

I'm in early mid 70s and dealing with same L-3 thru S-1 scoliosis, stenosis, degenerative osteoarthritis. Spine specialist suggested 2 options to relieve varying extreme to moderate pain. Most extreme is fusing the 3 areas, but he suggested I try bilateral nerve ablation of facet joints and referred me to pain specialist. Insurance requires 2 "diagnostic block injections" to determine if successful (temporary relief only). I just had 2nd test last week and will be proceeding within a month with nerve ablations. Current use of Aleve, occasional codeine with acetaminophen and wear back support brace when on my feet a lot.

Jump to this post

@kathy2hilltop Do you have a back brace you would recommend?

Isn't ibuprofen better than Aleve for back pain? And ibuprofen along with acetaminophen at the same time work better together than each one separately. My wife went thru with the 24 injection nerve ablations (she had it done 2 or 3 times), but it wears off quickly. If it were me, I'd try fusing the 3 areas. All the less invasive options just seem to be like band aids.

REPLY
Profile picture for laughlin1947 @laughlin1947

@kathy2hilltop Do you have a back brace you would recommend?

Isn't ibuprofen better than Aleve for back pain? And ibuprofen along with acetaminophen at the same time work better together than each one separately. My wife went thru with the 24 injection nerve ablations (she had it done 2 or 3 times), but it wears off quickly. If it were me, I'd try fusing the 3 areas. All the less invasive options just seem to be like band aids.

Jump to this post

@laughlin1947
Yes, ablations have varying success and longevity rates. I'd prefer to try less invasive first as does my spinal specialist/surgeon. Aleve (naproxen) taken once a day as needed works better for me than ibuprofen that only gave 4-6 hrs. relief. Sorry, no recommendation on back brace as they were my mom's from MANY years ago for similar back issues. Perhaps your doctor has a recommendation he can prescribe that maybe Medicare would cover as "durable equipment"? I haven't looked into that yet.

REPLY

Many thanks for your reply, but my PCP has no experience with back braces, and I get the impression she does not want to bother with it, since the time she would devote to the issue is not billable.

REPLY
Please sign in or register to post a reply.