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@lanierj1 Thanks for the info, can you find out if he had abnormal bilirubin readings, mine are good and I think normally that is high if bile ducts and such are messed up, last I looked. Also a couple docs talked about that with me but who knows anymore.

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Replies to "@lanierj1 Thanks for the info, can you find out if he had abnormal bilirubin readings, mine..."

@jsudjian He said the doctor also suspected the rash was due to arthritis, but his labs were all normal the year before he turned Juandiced. It was then that the bilirubin and Lipase labs revealed a problem. He was living with the itching and frustration after nothing was helping. He tried all the anti-itching and arthritis meds with minimal relief. I am sorry you are going through the unknown right now. Hang in there with clean eating, exercise, and advocating for your health. I am praying for you. My husband also has PNET, which is only under surveillance(caught early), but he suffers from different symptoms that are always dismissed by his doctors, and that takes a mental toll that only makes things worse. You're right! Who knows anymore?