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@lizlarra99
Who removed your synovial cysts? Surgeon i just went to said that they were not the problem although they appear to be touching nerve endings, so I was offered spine stimulator and im terrified

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Replies to "@lizlarra99 Who removed your synovial cysts? Surgeon i just went to said that they were not..."

@cynmead I have had coccyx pain since 2009. Doctor said if was referred pain from L5-S1 so I had fusion done. It didn't help. Ortho said it was fractured coccyx, so I had what was supposed to be complete coccygectomy. Did not help. Images showed Tarlov cysts, under my sacrum, near my spinal cord. They appeared to be touching nerve endings so had laminectomy done by special surgeon in Dallas. Didn't help. Then, I went to a coccyx specialist at Rutgers who could immediately see that I still had fragments of my coccyx. Had a revision coccygectomy. Didn't help. A spinal cord stimulator had been suggested several times throughout the years but I wanted to fix the problem, not just mask it with a SCS. I had researched them in 2009 and a couple more time after. I often saw poor reviews and was scared. After, all I put my body through, I wish I had tried SCS first. It's relatively non-invasive compared to what I already had done. My husband has Parkinson's and had a Deep Brain Stimulator implanted in his brain, about two years ago. It is helping him. The technology and concept are quite similar. If he can find success with DBS, Brain Surgery, I figure a trial of SCS and SCS surgery should not scare me. I am waiting to see if my insurance company will approve the SCS trial for me.