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Neuroendocrine Tumors (NETs) | Last Active: Sep 29 6:35pm | Replies (9)
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@fraaseo No I have not, my physicians do not suspect this in any way. Is that what you were screened for with a positive result?
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@andee0403 Some of my family & I did genetic testing because our maternal GF died from colon cancer. I tested positive for carrying 1 MUTYH gene mutation which puts me at risk for colon cancer. I have stage 4 colon NETS with Mets & that makes me think it has to be related. My niece had further testing done & was diagnosed with Ehlers-Danlos syndrome. Just seems to be too much of a coincidence.