Connect
← Return to Have Bronchiectasis, recently diagnosed with pseudomonas
Discussion
Have Bronchiectasis, recently diagnosed with pseudomonas
MAC & Bronchiectasis | Last Active: Sep 30 4:40pm | Replies (211)Comment receiving replies
@windwalker, you are one clever cookie!!! I do have 1 CF gene and so did alot of MAC/bronch people on this site (it takes 2 CF genes to have CF) a way back, having 1 CF gene means lung issues and low BP etc, very interesting. Windwalker have you been tested for the CF gene?
Replies to "@windwalker, you are one clever cookie!!! I do have 1 CF gene and so did alot..."
@heathert I find it interesting that the Alpha-1 gene acts similar to CF. The double ZZ can cause death, or extreme illness, or very few symptoms if any. (My mom passed away at age 58 from it.) A carrier of one of those genes, can experience chronic lung illnesses. I am a carrier of alpha-1 (got it from mom) They know more about the full blown Alphas, but not the carriers. They still don't know how or why a carrier gets lung disease.
@heathert How did you get tested for CF gene? Did you request the test or did your doctor initiated it?
Connect
@heathert Yes, I was tested in 2016 when I went through the pre-qual for lung transplant. They test you for EVERYTHING. I tested negative. It was an interesting process for the pre-qual testing. As a result, they can tell you everything you have ever had or were exposed to in your lifetime from the thorough bloodwork they do.