I think the key to this is to address health issues we're experiencing after having COVID, rather than looking at this as "long COVID."

I think doctors tune us out if we say we have long COVID because they don't know what to do with that.

It is SO HARD to get a physician in your corner when you have so many things going on.

Fatigue is a symptom of so many illnesses. I think we have underlying illnesses that are not diagnosed causing our symptoms.

Because of our genetics, the state of our immune system going back to our childhoods, and our bodies' individual reactions to the COVID virus, I believe we are all experiencing various illnesses, not one disease: "long COVID."

I have also come to believe that many of these illnesses are hidden autoimmune disease triggered by the spike protein.

It's just awful that so many people are blown off and are experiencing horrible quality of life issues with no answers.

I've had multiple illnesses since December 2023. Only recently have I gotten any potential answers, but only because I have had to advocate HARD for so long and spent my own money on labs, that finally, finally showed a huge irregularity, which led to further testing.

I was recently in the ER for stroke symptoms and the inability to bear weight on one of my legs.

I didn't have a stroke.

One issue was identified: a likely ongoing internal shingles infection since I first had COVID in late November 2022.

I also found out that I likely have secondary adrenal insufficiency, but I've had to wait several months to get into an endocrinologist qualified to address it.

That's just part of my story, but I want to encourage you to not think of what is going on with you as "long COVID", but as a possible cascade of other illnesses triggered by the virus!