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Have Bronchiectasis, recently diagnosed with pseudomonas
MAC & Bronchiectasis | Last Active: Oct 17, 2023 | Replies (208)Comment receiving replies
@katemn - Hello! In searching for help for my Husband who has had pseudomonas on and off since 2009, bronchiectasis for years and MAC since 9/2017. He is 75 and also has COPD and Pulmonary Fibrosis. I came across this very informative site! I can’t wait to read more about everyone’s stories.
My husband has had three rounds of IV antibiotics through a PICC line since beginning of July with no help. Oral antibiotics do not work anymore. One round of Ceftazadime and two rounds of Cepifime(?). He just got approved for the Tobi inhalation solution to start today.
My first question is 1) has anyone experienced severe nausea and/or chronic constipation?
My second question is, obviously (2) has anyone had the same problem getting a control on the pseudomonas? We have a wonderful team of our Infectious Disease Dr and our Pulmonary Dr at Loma Linda Hospital. History of also seeing wonderful pulmonary dr at UCLA.
Thank you for reading my husband’s illness and any responses will be welcome!
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@wifelaurie Good morning Laurie and welcome to our group. I think it is wonderful of you to join 'Connect' on your husband's behalf. My name is Terri, and I now mentor this group. Your husband seems to have more than his fair share of serious lung issues. I feel for him, and you also. I know it is hard on the caregivers too. To try to answer your questions; some meds can cause nausea and constipation. If you can isolate which drug may be causing it, then deal with it. If one causes nausea, test to see if taking it differently like on an empty stomach or with food helps. Also, try to get plenty of fluids in him. That will help not only with constipation, but it will thin the mucous in his lungs and make it easier to cough up phlegm. Perhaps his doctor can recommend a remedy. As for the pseudomonas, I had it in 2016 and was treated with inhaled tobramycin. It worked wonders for me. The cough I had for years, was gone in 30 days. I am on monthly antibiotics for life including the tobramycin every other month. Fortunately, I tolerate them well. I believe that your husband may need to be on maintenance antibiotics indefinitely also as he will be forever suseptible to getting infections due to the numerous lung issues. Pseudomonas can be tenacious. It can be tough to get rid of, and it can return, as you know. (That is why I am onTobramycin every other month) It is good stuff. I hope it works as well for your husband as it did for me. Is his Pulmonary Fibrosis very advanced?