Maybe not neuropathy causing hand and arm weakness and numbness

Posted by joanland @joanland, Sep 16 8:56pm

An upper extremity EMG today revealed that the loss of strength and flexibility in hands and lower arms plus loss of some feeling in hands may not be due to PN. Suspected is a possible compression of a cervical nerve. MRI to follow. This has been a surprise; with definite PN in feet and lower legs, I attributed the change in sensations in my upper extremities to PN as well. Tests today showed that may not be the cause.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Thank you for your illuminating and encouraging answer. I will keep searching for answers. Sending loads of encouragement as you go through your treatment.

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Profile picture for tntwo99 @tntwo99

I have what I assumed was PN in my hands as I have it in my feet and lower legs. I also have cervical and lumbar radiculopathy, which causes so much pain in my arms and shoulders. I just recently started with tremors in my hands and an inability to hold onto utensils. I mentioned this to my doctor's Nurse Practitioner but she just put it off to an irritated nerve. I would like to see a neurologist but at my age (78) they probably would say don't bother.

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Not the ones that respect patients... and themselves. It is hard to be your own advocate when you are looking for care, but take heart from the octogenarians you encounter on Connect who have overcome the hesitancy. You are worth it!
~ Barb (also 78)

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Profile picture for John, Volunteer Mentor @johnbishop

There are quite a few discussions on CIDP if you want to see what others have shared - https://connect.mayoclinic.org/search/discussions/?search=CIDP.

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Hello, does anyone have restless legs syndrome along with feet neuropathy? If yes, how do you manage it especially at night. Thanks

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Profile picture for corneliagd @corneliagd

Hello, does anyone have restless legs syndrome along with feet neuropathy? If yes, how do you manage it especially at night. Thanks

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Ropinirol, a prescription that works perfectly for me. I usually take it mid-day and definitely at night. I'm on a bunch of medications for various issues and this does not interfere with any of them. Also, for me it seems to work with no wait time - as if it couldn't even have time to dissolve and the RLS is gone. I have seen others on Connect who have found that Ropinerol works for them, as well. RLS is so annoying - may yours be a thing of the past real soon!
~ Barb

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Profile picture for vicmar @vicmar

Your age shouldn’t matter! I sought answers after been diagnosed with Idiopathic Neuropathy. I met some amazing specialists along the way. Turns out I have Lymphoplasmacytic Lymphoma and Cryoglobulinemia Type1. I’m halfway through chemo and my left hand is no longer numb, right is almost clear, toes and feet changing. Keep looking for answers.

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Thanks. I am going to read your note to my neurologist. I am really happy for you 💖 Mia Crabtree

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Profile picture for corneliagd @corneliagd

Hello, does anyone have restless legs syndrome along with feet neuropathy? If yes, how do you manage it especially at night. Thanks

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Glad to see that you have had a reply from @bjk3 for what helps her RLS. You might also want to scan through the other comments and suggestions on RLS - https://connect.mayoclinic.org/search/discussions/?search=RLS%20what%20helps.

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Profile picture for miacrab @miacrab

Thanks. I am going to read your note to my neurologist. I am really happy for you 💖 Mia Crabtree

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@miacrab
Best of luck to you! It took over seven months of waiting for consults, test results, worrying, more tests. Finally finding the answers and having a plan was a relief. Hang in there! I’m close to 71; planning on watching my darling grandchildren grow up.

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Profile picture for miacrab @miacrab

Thanks. I am going to read your note to my neurologist. I am really happy for you 💖 Mia Crabtree

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@miacrab
I hope you get some answers!! It took me months of referrals and tests to get a diagnosis. The Dr who really got things rolling was a rehab doctor; I wasn’t sure it was worth waiting for, but she had so much experience with neuropathy, and agreed that my feet and hands were “weird”. Along with potential treatments I’d never heard of, she ordered lots of blood work that led to more bloodwork. My blood is well traveled! The hematology/oncology referral resulted in my diagnosis seven months after my search began. Hang in there!

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Profile picture for vicmar @vicmar

@miacrab
I hope you get some answers!! It took me months of referrals and tests to get a diagnosis. The Dr who really got things rolling was a rehab doctor; I wasn’t sure it was worth waiting for, but she had so much experience with neuropathy, and agreed that my feet and hands were “weird”. Along with potential treatments I’d never heard of, she ordered lots of blood work that led to more bloodwork. My blood is well traveled! The hematology/oncology referral resulted in my diagnosis seven months after my search began. Hang in there!

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Thanks for your encouragement!

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Profile picture for joanland @joanland

Thanks for your encouragement!

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@joanland You will notice that we removed your phone number from your post to protect your privacy. Members can share personal and contact information using the private message feature of Connect.

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