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Peripheral sensory neuropathy - Anyone tried Walkasins?

Posted by ssjohns @ssjohns, Apr 25, 2023

I have recently been diagnosed with PSN and I’ve been searching for remedies. I am looking into the spinal cord stimulator and recently discovered a product called Walkasins by RxFunction. It is a prosthetic device you insert in your shoe which sends signals to your brain from the bottom of your feet. Looks promising for balance and gait issues and will help prevent falls because it enables you to feel your feet. This requires a doctors prescription and I assume is covered by insurance. Has anyone else use this product?

Interested in more discussions like this? Go to the Neuropathy Support Group.

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timmy2098 | @timmy2098 | Sep 23 3:26pm
In reply to @ssjohns "OMG 😱 That’s a little steep, and not affordable for most people. Please let us know..." + (show)
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OMG 😱

That’s a little steep, and not affordable for most people. Please let us know if you get a response.

I signed up for one of the support groups on the foundation website, but have yet had an opportunity to join one in progress. I will email Katherine and inquire about this. She has been very helpful to me.

Thanks for the info.

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I spoke with the Folks at WALKASINS , they tell me they cost `1200$ and are working with MEDICARE for a approval and are 2/3rds of the way there , I also have the ACCELERATOR device coming the end of Sept 25 , which I paid 399$ for , I will post results as soon as possible. Tim Nolan

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Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Sep 24 10:05am
In reply to @stgeorge "There are good results that the Walkins nerve stimulation helps with balance." + (show)
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There are good results that the Walkins nerve stimulation helps with balance.

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Hello @stgeorge,

I merged your discussion with an existing discussion titled:

"Peripheral sensory neuropathy - Anyone tried Walkasins?"
- https://connect.mayoclinic.org/discussion/peripheral-sensory-neuropathy-device/

Members @yette, @timmy2098 and @ssjohns all considered Walkasins or have tried them and may have some information to share with where they are in regards to how it worked for them or their plan to try them.

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snagydude | @snagydude | Sep 25 5:27am
In reply to @snagydude "RE: Drop FOOT I have had idopathic PN ''Non-Diabetic for going on 10 yrs. Started in..." + (show)
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RE: Drop FOOT
I have had idopathic PN ''Non-Diabetic for going on 10 yrs. Started in my right foot but moved to the left foot where it has become the problem side for me. The doctors tested me and the left side was considerable (severer). I've been to three specialists who were all different and each tried their own remedies for pain. The first tried a blood pressure ciloztasol medication. It actually worked for a while. This med centers on providing more blood flow to the lower extremities. AFTER still having pain he lost interest in me. The second specialist focused on Gabapentin and got me up to 1800 mg whereupon I became cognitively an idiot. He told me he was moving and recommeded me elsewhere. Third doctor put me on pregabalin (lydocaine) and was reluctant to change my doseage..he slowly got me up to 50 mg morning and night. I still had severe pain in my left foot. Starting with drop foot. My regular MD saw this and we talked. She suggested 50 mg in early am, 50 mg early pm and 75 mg at bedtime. This helped...so much for specialist. She also recommended that I see a back specialist. He detected an area of spinal stenosis that he thought needed attention. Saw a specialist in microsurgery (Vanderbilt) who agreed with the diagnosis. He performed microsurgery on the stenosis. Happily afterwards with rehab I have a left side that hurts just like the right side with no drop foot. You might want to try a spinal specialist to see if you have spinal stenosis, Just my experience and I hope it might help people in a similar situation. Steve PS I am still on the prescription from my regular MD. She seems to have a more holistic perspective which has given me more ( partial) relief. I've tried all the meds etc. Now I also use my own prescription of essential oils with lydocaine. (posted this previously under creams when my pain gets excessive)

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@snagydude
Kathleene - good to hear that things have improved for you. It seems that you have exactly the same situation as I have. I also had the microsurgery at Vanderbilt but my spinal cord got infected and I had a really bad time for 6 months...actually fooled some doctors who thought that I wouldn't survive. BUT I'm still here. You are actually at the point where you recognize that you are one of your best friends who can take good care of yourself. I have done it all and am now going beyond traditional medicine. Most doctors will only stay traditional to avoid lawsuits for not providing standard care. My current situation is seeing my neuropathy diminishing. Yes diminishing. I have found some providers of Hyperbaric treatment. To date, I have had this treatment going on 10 times. It is not cheap and not supported by insurance. I've seen my neuropathy retreat from my knees to my ankles. Furthermore all the pain on the bottom of my feet is now much less. People are amazed that I am more active and doing better. I'm not saying that hyperbaric treatment is good for you. It is just an option that you may not have heard of. Please self educate. I go to Dayton TN for treatment. Do yourself a favor and look into it. Good luck...you are your strongest advocate and only you can take action. I've also gotten into TENS treatment on my feet. It seems to supplement the hyperbarics. PS lots of quacks in this area...so be careful. I make sure that a nurse is present when I get hyperbaric care.

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stgeorge | @stgeorge | Sep 25 10:19am
In reply to @snagydude "@snagydude Kathleene - good to hear that things have improved for you. It seems that you..." + (show)
Profile picture for snagydude @snagydude

@snagydude
Kathleene - good to hear that things have improved for you. It seems that you have exactly the same situation as I have. I also had the microsurgery at Vanderbilt but my spinal cord got infected and I had a really bad time for 6 months...actually fooled some doctors who thought that I wouldn't survive. BUT I'm still here. You are actually at the point where you recognize that you are one of your best friends who can take good care of yourself. I have done it all and am now going beyond traditional medicine. Most doctors will only stay traditional to avoid lawsuits for not providing standard care. My current situation is seeing my neuropathy diminishing. Yes diminishing. I have found some providers of Hyperbaric treatment. To date, I have had this treatment going on 10 times. It is not cheap and not supported by insurance. I've seen my neuropathy retreat from my knees to my ankles. Furthermore all the pain on the bottom of my feet is now much less. People are amazed that I am more active and doing better. I'm not saying that hyperbaric treatment is good for you. It is just an option that you may not have heard of. Please self educate. I go to Dayton TN for treatment. Do yourself a favor and look into it. Good luck...you are your strongest advocate and only you can take action. I've also gotten into TENS treatment on my feet. It seems to supplement the hyperbarics. PS lots of quacks in this area...so be careful. I make sure that a nurse is present when I get hyperbaric care.

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@snagydude
What is the Hyperbaric treatment? Where can I get more information?

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2 replies
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snagydude | @snagydude | Sep 25 2:20pm
In reply to @stgeorge "@snagydude What is the Hyperbaric treatment? Where can I get more information?" + (show)
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@snagydude
What is the Hyperbaric treatment? Where can I get more information?

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@stgeorge You can find more info on Ytube.

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John, Volunteer Mentor | @johnbishop | Sep 25 2:59pm
In reply to @stgeorge "@snagydude What is the Hyperbaric treatment? Where can I get more information?" + (show)
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@snagydude
What is the Hyperbaric treatment? Where can I get more information?

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@stgeorge Here's an existing discussion on the topic here:

-- Hyperbaric Oxygen Therapy (HBOT) for Peripheral Neuropathy: https://connect.mayoclinic.org/discussion/hyperbaric-oxygen-therapy-1/

If you click the link, it will take you to the first page of the discussion so that you can read through the posts by other members who have experience.

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