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Have Bronchiectasis, recently diagnosed with pseudomonas
MAC & Bronchiectasis | Last Active: Oct 17, 2023 | Replies (208)Comment receiving replies
@windwalker, Terri, thank you so much .. YEAH for Connect! That is the routine I have used also except I do my two inhalers first .. then the Saline. I use a baby sterilizer for all the equipment .. started that back when I was doing the inhaled Amikacin. BUT I still didn't quite get it .. you have a Toby ONLY neb cup .. BUT do you sterilize it daily? Wash and Sterilize 100% of the items daily? I ask because of : " Member advice from Conference: They stressed the importance of keeping your nebulizing equipment clean by use of boiling or using bottle sterilizers. "
That SOUNDED like DAILY washing and sterilizing!! Can't remember who posted that .. whoever did please jump in and tell us if it mentioned DAILY .. OR??? Sure makes a difference in effort and energy!! Hugs! Katherine
Replies to "@windwalker, Terri, thank you so much .. YEAH for Connect! That is the routine I have..."
@katemn also
wanted to add that my Dr and I both suspect I have been suffering from
pseudomonas infection for years prior to testing. I got a definitive on
the toby too. It kills pseudomonas, but NOT MAC. I asked because I was
surprised that all of my coughing stopped after my first month on Toby.
Mind you, I have been coughing my head off constantly for the last 12 yrs
at least!
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@katemn
I have two neb cups. One I use only for my Toby. The other I squirt the
levabuterol into and do a treatment. Then I immediately squirt in the saline and
do a treatment. It is ok to do that. The Toby cup cannot be shared. I know I
should sterilize everything, but I don't, I put it in the dishwasher. I plan to
get a bottle sterilizer, just have not yet.