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DiscussionHave Bronchiectasis, recently diagnosed with pseudomonas
MAC & Bronchiectasis | Last Active: Sep 30 4:40pm | Replies (211)Comment receiving replies
Replies to "@windwalker, Terri QUESTION: when you do your Saline .. THEN your Toby .. do you use..."
@windwalker, Terri, also .. when you say you do not "currently have an infection" .. be careful .. when I was diagnosed I was told .. just like the MAC .. Pseudomonas can be "stabilized" but not "cured" .. so the darn thing is still there in our lungs waiting to colonize EVEN when we don't have an active infection .. DARN! .. OR like me .. get a couple MORE bacteria that we've never heard of! Hmmm! Hugs! Katherine
@katemn Yes,
I am aware that we will never be cured of these bugs. What I was inferring
was that I have no active infection or colonizing bugs at the
moment.
@windwalker. I use my nebulizer once a day for clearing mucus, but I was never told to sterilize my nebulizer. Can you direct me to information on how to do that? Thank you.
@katemn The
instructions that came with the toby was to never use it in a nebulizer that was
just used for another solution. I have a neb cup that I use ONLY for the
toby. The toby should be last on the nebulizing list (per dr instructions) I
first OPEN lungs with Levabuterol, second -CLEANSE lungs with Saline, last
MEDICATE with Toby. Makes sense, you don't want to do the Toby and then do a
cleanse and possibly cough up the medicine you just put in there. Also, makes
sense to OPEN your lungs to clean them and then medicate them. Right? As for
sterilizing my neb cups and mouthpieces. I have never done it except by putting
them in the dishwasher. My lazy butt admittedly will use the same mouthpiece
several times before putting into the dishwasher. I do not currently have an
infection, my treatment now is as a prophylactic measure. Hope this info helps.
Terri M.