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Profile picture for chippydoo @chippydoo

RP 3 years ago.
BCR @ 2 years with .22 PSA
Started ADT then 3 weeks later Radiation.
Sought a second opinion after radiation at a CCC research hospital and he stated that he would not take me on as a patient as he only treats stage 4's.
Gave me a 70-30% chance of never having to deal with this again.
Suggested if I went BCR again to wait until PSA was 2.0 and stated they could find it at that point. Will I do it? Not sure. Now that I am off private insurance more facilities open up for consultation and consideration.
No more EBRT as they torched my rectum and 6 months later bleeding everyday. I will travel for proton.
They wanted me in my RO office for PSA testing and whatever two days after finishing what we knew was a successful ADT based on being non detectable at 3 months. I view that as a money grab for a doctor's kid BMW.
My limited observation is most at .2 get a PSMA Pet and nothing shows up on the scan. Then the cycle of ADT and PETS for life start.
Somewhere in this, quality vs quantity of life has to be considered. I don't want to be dope sick the rest of my life. I am a fighter but I feel like I am fighting greed over cure at a private Urology practice that pretty much has a monopoly on the area.

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Replies to "RP 3 years ago. BCR @ 2 years with .22 PSA Started ADT then 3 weeks..."

If you mean, dope sick because of ADT or the ARSI drugs, that is not definite. You can learn to live with the drugs. I’ve been on ADT for nine years and an ARSI for 5. Yes, Zytiga did really did cause me issues, But I was able to do it for 2 1/2 years without becoming dope sick.

Since then, I’ve been on Darolutamide And it is pretty easy On the body.

I guess it’s a sort of case where you Take was available now and thenwait until they come out with the next drug that really can lick the things we all have.