Hi Chris …
“Do not suffer in advance”
My goodness, when I read that I jumped up for paper and wrote it down. Very few but powerful words-
My visit with primary doc was so good today. Like seeing an old friend, actually is. He thinks I made a good decision asking my neuros opinion on the med change since I work with him here ( messaged neuro today). And he thinks neuro will agree with the med addition also. I’ll just feel better when I see my neuro Oct 14 and see how he acts toward me.
BUT, it will work out so I’m going to try and lay it down!
When my neuro made the referral to Vanderbilt he didn’t make it to a specific doc, left that to me. I researched through the ones on staff and chose this one due to some of the work and papers he had written. I did ask neuro what you suggested: what protocol does he prefer for working with epi. Hopefully he will respond tomorrow-
When and if you feel like sharing regarding the status epilepticus, just let me know. That must be very difficult to even think about.
Peace to you my friend,
Brenda