← Return to need help: how to cut back time spent managing BE and MAC

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Yes! It has.
In 4 years, I have had three exacerbations, all of them following vacations when I failed to nebulize.

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Replies to "Yes! It has. In 4 years, I have had three exacerbations, all of them following vacations..."

@2019mc What does "failed to nebulize" mean? Did not nebulize at all, only nebulized once in two days, three days etc. Curious if you don't mind.
A well meaning pulmonologist indicated I could skip a couple of days if going out of town etc. A patient on this site then said something to the effect of comparing it to brushing your teeth....and we sure don't want to do that...not brush our teeth at least 2x daily!
So far I have not had an exacerbation. I was diagnosed in 2022 and knowing now what I know. (in hindsight)....I had BE and a MAC infection a good couple of years before being diagnosed but always being told..."your healthy." I have the intracellular infection, low load so far and waiting for a sputum result... it is 30 days in the lab and possibly 30 days before the final results. Always anxious during the waiting period but try to put it out of my mind with hopes of it being stable at a low load.
Barbara