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The Long Quiet

Caregivers: Dementia | Last Active: 3 days ago | Replies (40)

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I am just so lonely now that my husband has developed dementia. The doctor calls it mild-moderate, and I know it could be so much worse. He just wants to stay home, and I sure wouldn’t leave him alone. Family members think he is doing really good, for his age , 92. They don’t see all the changes. For me, it hurts terribly, to see the changes from what he was.

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Replies to "I am just so lonely now that my husband has developed dementia. The doctor calls it..."

I'm sorry for how you feel. I feel the same way and my husband is 78 and wants to stay home. It doesn't make easier when they have MCI - mild moderate whatever, it's still the same diagnosis where we feel we don't have time left.....before things progress. But at 92, at least you've gotten to enjoy him, for a long time and have wonderful memories of a man with a mind that was once more active. I know that doesn't make it easier but with this diagnosis we just need to find some gratitude in it all. I worry constantly about my husband, the things he loses, whether he looks pale on a given day, and what that means. I'm just trying to draw from more faith, and ask God to help us through this every day. Also, trying to manage my own stress, with my blood pressure off the charts due to everything taking place. We just have to find some peace and gratitude, I don't have MCI yet I see changes in myself, hair loss, high blood pressure, I think accepting changes in any one is hard, but we have to accept and move forward. Maybe it's good that family members think he is doing really good. I find sometimes, that's their way of handling and/or being in denial. I share in your thoughts and this MCI caregiver does know how you feel.

I can so relate to what you are sharing about your loneliness. My husband too has moderate dementia. I cannot leave him alone in the house. It would be like leaving a toddler alone. This keeps me from going out and doing the things that I enjoy so much. I have a baby monitor so I can be out in the garden and still know when he has gotten out of bed. It is so painful to see him as he is now when he was so smart and capable and funny before the dementia journey began. Family and friends can't know the extent of the changes you see because they don't live with him. I have found comfort and support in this space where I can share my situation with others who understand. The posts here remind me that I am not alone. I have researched and educated myself on the positive approach to caring for someone with dementia. It reminds me to look for the things that my husband can still do and let go of the things that he will never do again. I also bought a daily reader of devotional readings for caregivers that I start my day with. It helps me remember that there is a higher power that will always be with me on this dementia journey. Reach out to others that are on the same journey. It helps to share what you are feeling with those that can understand. You are not alone. May God bless you and your husband.