@baa
Thank you for your kind words, Brenda. I'm so happy to hear you are feeling better. 😍
Please, don't be so harsh on yourself. I want you to know that I don't always have this calm voice you see in my posts here. Hatha Yoga has been very helpful in this respect. I was a much more agitated person before discovering yoga.
Sharing my status epilepticus experience is definitely on my to-do list. You mentioned you are frightened of having such an experience. This brings to mind some wise words from my dearest yoga teacher: "Do not suffer in advance". When we live in fear, we rob ourselves of the chance to fully enjoy life, spending more time in the future than in the present. I have a kind of epilepsy (temporal lobe epilepsy with mesial sclerosis) that is quite refractory. Your epilepsy may be a different type entirely.
How wonderful that your PCP is back and close to your home again! Connecting all these medical portals so doctors can work as a team is a fantastic idea. If I were in your situation, though, I'd keep the epileptologist as the lead doctor for your epilepsy treatment.
Why don't you ask your neurologist or epileptologist if they know each other, putting your mind at ease?
Chris