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Anyone had salvage radiation therapy post-prostatectomy?
Prostate Cancer | Last Active: Sep 24 4:30pm | Replies (67)Comment receiving replies
Wow, I can’t believe a GU oncologist would tell you that you don’t need to do anything until your PSA hits 2 After having surgery. The medical community has guidelines that say once it hits .2 that you absolutely need to have salvage radiation. Of course, if you did not have surgery, then you wait till your PSA hits 2 over the minimum it ever went to. That’s very different from after you had surgery.
It’s good to hear that you had the right treatment. After I had salvage radiation, they did not give me ADT. They didn’t know I had BRCA2 at that time, Almost definitely would’ve been different if they did. Even with the genetic problem, it took 2 1/2 years before my PSA started rising after salvage radiation, So ADT was really not necessary,
Sorry to hear about all your proctitis issues. As I mentioned before, I had absolutely no symptoms at all after radiation and most people I’ve heard from had very few side effects from it.
If you had salvage radiation, that means you’d already had a prostatectomy, So it doesn’t do any good to put in a barrier since the prostate is gone. They would not do it under those conditions.
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RP 3 years ago.
BCR @ 2 years with .22 PSA
Started ADT then 3 weeks later Radiation.
Sought a second opinion after radiation at a CCC research hospital and he stated that he would not take me on as a patient as he only treats stage 4's.
Gave me a 70-30% chance of never having to deal with this again.
Suggested if I went BCR again to wait until PSA was 2.0 and stated they could find it at that point. Will I do it? Not sure. Now that I am off private insurance more facilities open up for consultation and consideration.
No more EBRT as they torched my rectum and 6 months later bleeding everyday. I will travel for proton.
They wanted me in my RO office for PSA testing and whatever two days after finishing what we knew was a successful ADT based on being non detectable at 3 months. I view that as a money grab for a doctor's kid BMW.
My limited observation is most at .2 get a PSMA Pet and nothing shows up on the scan. Then the cycle of ADT and PETS for life start.
Somewhere in this, quality vs quantity of life has to be considered. I don't want to be dope sick the rest of my life. I am a fighter but I feel like I am fighting greed over cure at a private Urology practice that pretty much has a monopoly on the area.