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My carcinoid tumor is inoperable: What are the best ways to control?
Neuroendocrine Tumors (NETs) | Last Active: Oct 3 8:33am | Replies (45)Comment receiving replies
Since you are asking these questions, @panorman3, I would suggest getting a second opinion on your surgical options. I would suggest that this second opinion come from a NET specialist. They are not usually found at your local oncologist's office. Here is a listing of NET specialists from the Carcinoid Cancer Foundation's webiste, https://www.carcinoid.org/for-patients/treatment/find-a-doctor/. Mayo Clinic has three locations and they have NET speciaists at each location. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63..
You are seeking answers and you are being proactive about your care. This is great. I hope you are able to consult with a NET specialist. I look forward to hearing from you again. Will you post again and let me know how you are doing with this process?
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I second your recommendation for getting s 2nd opinion from a NET specialist. When my husband was rediagnosed in 2022, we went to the oncology clinic who had worked with him for the first tumor in 1995. The Oncologist had heard of NETS but was totally unfamiliar with it. We are sure that he researched it prior to our 2nd appointment. He was referred to Mayo which has been excellent. We feel very confident that he is getting the best treatment and advice possible.