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Anyone had salvage radiation therapy post-prostatectomy?
Prostate Cancer | Last Active: Sep 24 4:30pm | Replies (67)Comment receiving replies
I went BCR in 2 years and started salvage at .24. I recently had a second opinion at a CCC with a Genito Urologist. He stated he didn't find me interesting as he only treats stage 4 cancer and wouldn't take me on as a patient at this time. He also stated to wait until my PSA hits 2.0, not .2 and they could find it then. At .24 I started Lupron and 3 weeks later salvage radiation. I agree with Jeff that your level is too early for scans as they more than likely won't show any lesions. PSA 2.0 seemed controversial to some in the room. Many rush to ADT at .2, myself included, but if I bounce again to BCR I will rethink the whole thing. Currently I am 2 months post 6 months of ADT treatment, 6 months post salvage radiation with my T@ 208 and PSA undetectable. I switched to Orgovyx after 3 months due to Anemia while on Lupron. After 3 months on Orgovyx my anemia was gone and LDL started to rise some. I had a hard time with radiation as the practice I went to wasn't interested in any prophylactic measure such as SpaceOre or Oxybutynin for bladder spaz. As a result my radiation truly sucked, blew up twice on the table in one session and now have Radiation proctitis. It sucks and I need to get in to see someone. I would suggest to anyone doing radiation to get Space Ore gel or similar and Oxybutynin for bladder urgency. If they won't do it, run don't walk away and find another radiologist. All this stuff is scary but a good provider will tee you up for success but nothing is guaranteed. Best wishes on your journey.
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Wow, I can’t believe a GU oncologist would tell you that you don’t need to do anything until your PSA hits 2 After having surgery. The medical community has guidelines that say once it hits .2 that you absolutely need to have salvage radiation. Of course, if you did not have surgery, then you wait till your PSA hits 2 over the minimum it ever went to. That’s very different from after you had surgery.
It’s good to hear that you had the right treatment. After I had salvage radiation, they did not give me ADT. They didn’t know I had BRCA2 at that time, Almost definitely would’ve been different if they did. Even with the genetic problem, it took 2 1/2 years before my PSA started rising after salvage radiation, So ADT was really not necessary,
Sorry to hear about all your proctitis issues. As I mentioned before, I had absolutely no symptoms at all after radiation and most people I’ve heard from had very few side effects from it.
If you had salvage radiation, that means you’d already had a prostatectomy, So it doesn’t do any good to put in a barrier since the prostate is gone. They would not do it under those conditions.