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Cricoid (laryngeal) Chondrosarcoma: Anyone else?
Head & Neck Cancer | Last Active: Aug 16 9:06am | Replies (54)Comment receiving replies
Deborah, I had Laryngeal chondrosarcoma and presented with a hoarse voice and difficulty breathing. I saw 8 world class surgeons throughout the US and fortunately I met Dr. Eric Moore at Mayo. He was the only surgeon who had an approach that had a high probability of a successful outcome preserving all functionality. He removed my tumor in its entirety, opened my airway and preserved the one remaining vocal cord and kept in tact the paralyzed vocal cord so that I could breathe, eat and speak. I had a temporary trach that I was able to remove post op after a couple of months. I urge you to visit with Dr. Eric Moore at Mayo, he was the answer to my prayers. Jeff
Replies to "Deborah, I had Laryngeal chondrosarcoma and presented with a hoarse voice and difficulty breathing. I saw..."
@jeffk and @deborahe
@colleenyoung
Hello,
I see this post is from a number of years ago, but thought I would reach out in case you might receive this message. I would love to know how you are doing since receiving treatment at Mayo. I have been diagnosed with a laryngeal chondrosarcoma which involves my left vocal cord and the cricoid cartilage. I live in New Mexico and had transoral CO2 laser surgery to debulk the tumor 2 years ago. Since then, there has been a reoccurrence of the tumor. At my last appointment at UNMH, my surgeon discussed a total laryngectomy, although they are taking my case to a tumor board. I’m very interested in your experience with voice preservation surgery, as I would certainly like to avoid a total laryngectomy.
Thanks so much,
Jane Heinstein
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Jeff, Thank you so much for your detailed reply. It's very encouraging to hear of your successful surgery, especially as there are so few people with this cancer. I had surgery two weeks ago with Dr. Jan Kasperbauer at Rochester. I left the hospital with a temporary trach as well. Did you have any additional surgeries to reduce granulation and swelling? Deb