I’ve been on it nine years. If you want The best progression free survival you need to listen to what your doctor tells you.
You need to do a few things to be able to manage ADT (Orgovyx). For one you need to do a lot of exercises. I go to the track twice a day and run/jog a mile Each time. I also try to go to the gym three times a week and do weight training. This can offset the fatigue some people have.
I’ve never had the fatigue problem, but I’ve had others. I used to get a lot of hot flashes. I found ways around that.. When you are on ADT you will find your muscles deteriorate quickly. Your weakening stomach muscles will cause you to have a belly. Your other muscles will not keep up unless you exercise and do weight training.
Another thing you need to do is take bone straighteners because ADT weakens your bones. I took Fosamax pills once a week for six years and now I am on Zometa infusions every three months. A bone doctor at a recent prostate cancer conference said that everybody on ADT should be taking bone strengtheners. You should also be taking calcium and vitamin D. Calcium citrate is the preferred calcium and you should be taking 500 mg twice a day to keep your bone strength up. These are all things your doctor should’ve talked to you about. If not, you should talk to your doctor about it because these things are important.
If your doctor is not willing to do all these things, you need to get a second opinion at a center of excellence. You wanna make sure you are treated properly, especially since you have what appears to be a very aggressive cancer.
You should get a Dexa scan to find out how strong your bones are, They are going to get a lot weaker with ADT so you want to know how strong they are to start with. Ask your doctor about this.
Your prostate cancer case was apparently quite aggressive Or they would not have said you needed orgovyx (ADT) for three years.
Gleason eight only requires 18 months by the NCCN, that sets the standards for prostate cancer treatment. I would imagine your biopsy has shown that you have more aggressive problems withyour prostate cancer.
There must be more issues in your biopsy than you are aware of.
K - ty for the info - Gary