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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Sep 23 5:25pm | Replies (9357)Comment receiving replies
@irene5 I assume you have a hard time producing sputum samples. In order to get insurance coverage and/or financial assistance for Arikayce, did you need to have a bronchoscopy with a positive result six months after starting the big 3?
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For insurance coverage for Arikayce which was a combination of the Arikayce assistance fund and Medicare I needed to be unable to tolerate the Big 3 or at least two of the Big 3 for I believe 6 months. I do not believe a bronch was necessary. I had had a bronch indicative of MAC after a sample had been sent out and plenty of CT’s that indicated it. I had had yearly bronchs done the last one I believe after the Arikayce treatment where the MAC was gone at that time but had been substituted with Aspergillosis. And yes - dry as a bone!! ( Classic Lady Windermere). I am unable to have further bronchs due to a complication that happened afterwords. No spit from this old lady ever! At UMASS they say my case is “complicated.” Ah, the joy of it all! Irene5