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New pNET so scared

Neuroendocrine Tumors (NETs) | Last Active: 4 days ago | Replies (18)

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Thank you for sharing your experience. I hope mine is similar and can be observed for a bit. However I will be in the dark for these two month not knowing the grade or type, can wait or not. So I’m really anxious and wonder what I should do.
Did you see 6 surgeons through 2nd opinion?

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Replies to "Thank you for sharing your experience. I hope mine is similar and can be observed for..."

I boy had one opinion. I trusted my surgeon completely. He was extremely informative and drew a diagram of where the tumor was and then drew another diagram of what The Whipple surgery entailed. He put me completely at ease. I sincerely that you can also trust the doctors that you are able to see. I wish you all the best and reach out to NET organizations. They are extremely informative in what you can expect going thru this journey. Prayers to you and your family

Hi, yes for additional opinions, as they recommend the distal surgery, but I’ve heard central could be better for me. Some surgeons recommend laparoscopic/robotic and others, open. I’ve heard open is better (for me), but not everyone agrees.