Who has been on lupron for a long time, and/ or firmagon?

My husband's PSA is still NOT undetectable, it's lower but not 0..... it started at almost 300 in February and he was put on monthly Firmagon then later added the Zytiga pills and now finished Chemo, it had lowered but I think the last few months were something like 4, then 2.8 then 1.6, then 0.8 and now 0.68... he's worried that it's not effective. PET scan is mid October, so we'll see.
The first PET scan showed it in prostate, pelvis, bones, hip, lymph nodes both low and high, and innumerable focci in lungs! I sure hope this next one will be better!

Good luck, It seem that ADT plus chemo is working for you with the reduction in PSA. Zytiga and Orgovix did not do it for me either and now chemo is in my future.

Firmagon crippled me for a couple days with extreme back pain if I tried to move. I was dumb enough to let him inject me twice tho I at least wore depends that night. I had Lupron depot for severl months after that and eventually was cancer free for several years. I started wit Lupron again and had no issues till I received the 6mo Lupron which worked great for 2 years but gave me a complete body rash, head to toe. I must be special.

I took 6 Month Lupron shots for six years. I’ve never had any noticeable side effects besides hot flashes. I did have the muscle deterioration that it causes and had to go on both strengtheners for the whole time I’ve been on it. I try to go to the gym three times a week to offset the muscle loss.
Got to admit the rash problem is really an obscure problem. I attend a lot of online meetings, at least eight or nine a month and I have not heard anybody else say they had that as a problem.

Wow. I feel special. LOL!
Weak is a fact. I need help at the grocery store, with anything 20 lbs or more. strengtheners?
Night Sweats are more like a drenching rain.
I am OK with all of it as long as it works,
Best Wishes.

I have an embrlabs.com wave product (wave 2). I’ve used it for Over three years now. It’s like a refrigerator that looks like a watch and sits on the inside of your wrist. You could set up one of the buttons for their night mode . Hit the button twice and It Produces cold waves at measured times during the night and prevents hot flashes and night sweats. They used to bug me, before I got this device . When you start to feel a hot flash coming on, you hit another one of the buttons twice and it sends cold chills through your arms and it reduces the intensity, shortens the life and can stop the hot flashes if hit quickly enough.
https://embrlabs.com/
They have a 60 day moneyback guarantee

If you get one, let me know and I can send you the instructions for Configuring it ideally.

I have an embrlabs.com wave product (wave 2). I’ve used it for Over three years now. It’s like a refrigerator that looks like a watch and sits on the inside of your wrist. You could set up one of the buttons for their night mode . Hit the button twice and It Produces cold waves at measured times during the night and prevents hot flashes and night sweats. They used to bug me, before I got this device . When you start to feel a hot flash coming on, you hit another one of the buttons twice and it sends cold chills through your arms and it reduces the intensity, shortens the life and can stop the hot flashes if hit quickly enough.
https://embrlabs.com/
They have a 60 day moneyback guarantee

If you get one, let me know and I can send you the instructions for Configuring it ideally.

Hi,
do you have an opinion on buying out right,
or doing the 20 bucks a month rental?
thanks,
Robert

I have been on Lupron every 3 months for a little over 2 years and have had no soreness after the shots. As for heart disease, I have been active all my life and continue to work out in a gym for ~3 hours 3 days a week and ride a recumbent trike (I have had some balance problems since the chemo I did last year and don't trust myself on a bike any more) for 20-30 miles 3-4 times a week. Rather than worry about heart disease, exercise! The other thing about exercise is that it dramatically helps my mental state and sleep. Based on my admittedly short experience, Lupron is good treatment and not to be feared.