Chronic upper abdominal pain

Posted by loricx3 @loricx3, May 28, 2019

I have had chronic upper abdominal pain (mostly center and to the left) for about a year. It has worsened over the past 4-5 months and includes nausea, and worsening pain after eating/drinking. I often wake up at night with pain that feels like it is gnawing through to my back. I have a history of small bowel Crohn's (unchanged in years), as well as diagnosis of GERD, LPR and Bile reflux disease. I have been on PPI's for two decades without much relief. I had an EGD in 10/2018 and there was dome bile pooling in the stomach and some focal gastritis. I have fatty liver and a small 'cyst' of the pancreatic tail. I keep telling my GI that I feel that there has been a change since last year and requested another EGD (am scheduled for a colo next week). He states there is no reason to repeat the EGD. He wants to put me on Prozac for "Functional Abdominal Pain." All recent labs have been basically negative; MRCP pretty much benign; uncontrasted CT abdomen in 1/2019 negative. Could use some thoughts on this whole situation. Thanks

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fleet enemas help alot.

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Profile picture for graceandpeace @graceandpeace

I'm so sorry you are having so much trouble and hopefully the CT with contrast will prove beneficial. I just wanted to ask how much of a dose was the amitriptyline that they wanted to put you on. I know that a smaller dose does not treat depression, so the only thing it would do would be to relax nerves. My rheumatologist started me on the lowest dose of 5mg, and stressed that it was not being prescribed to me for depression bc he knew that was not his diagnosis, and he said even if it was, that minimum of a dosage would not do anything for depression. Despite all of that, though, I was on it for about 4-6 wks for my body to adjust to the side effects (mainly grogginess), but then he decided to take me off of it bc it wasn't helping that much with pain, and my body wasn't adjusting to the grogginess. He wind up putting me on Gabapentin which was back in November, and it has helped quite a bit (along with diet changes and physical therapy). The gabapentin only took me about 2-3 days to adjust to sleepiness and ever since, I have been fine.

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What was your diagnosis? How often do you take the gabapentine? My husband has constant pressure pain in his upper abdominal area. Compressed artery found on cta scan. But when he saw 2 vascular surgeons, 1 said that wasn’t his problem, and the other said it was, but because he did not respond to a nerve block, they said surgery would likely not help, and prescribed gabapentin, 3 times a day. He is not one for talking meds, so he has not started. He did take a similar drug called duluxotine, which did not help

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Hi @plantlady9, what are your husband's symptoms? Does he still have his gallbladder? Has he been evaluated for SMAS? I'm struggling with daily upper right abdominal pain for the last 3 1/2 years. All my tests have been clear, but I suffer terribly with pain daily. Praying we all find relief!

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Profile picture for ken82 @ken82

Operation was a "Nissen" .... The Gastropanesis never goes away ...it is for life... one just has to upend life and learn to cope... keeping up weight so if you get sick or have other complications you have some weight to lose..

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@ ken82 - wondering how you are doing lately? How are things going with managing the gastroparesis?

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Wow. My pain is almost daily too. Nausea, vomiting and upper abdominal pain. I have to go straight to the ER. 3yrs of this, all lab work comes back fine and no one can diagnose me.

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Thanks. A new start and great leads.

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Wow. Our case is so similar that it is scary. What are you doing now?

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Profile picture for danariatodd2 @danariatodd2

Wow. My pain is almost daily too. Nausea, vomiting and upper abdominal pain. I have to go straight to the ER. 3yrs of this, all lab work comes back fine and no one can diagnose me.

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Hi, @danariatodd2 - having almost daily abdominal pain sounds very challenging to live with. Are you having the nausea and vomiting almost daily, too? Have you seen a gastrointestinal specialist about your symptoms?

@dwinters - how is the daily upper right abdominal pain you mentioned? Has anything changed?

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Profile picture for plantlady9 @plantlady9

What was your diagnosis? How often do you take the gabapentine? My husband has constant pressure pain in his upper abdominal area. Compressed artery found on cta scan. But when he saw 2 vascular surgeons, 1 said that wasn’t his problem, and the other said it was, but because he did not respond to a nerve block, they said surgery would likely not help, and prescribed gabapentin, 3 times a day. He is not one for talking meds, so he has not started. He did take a similar drug called duluxotine, which did not help

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@plantlady9 - how is your husband doing? How is the constant pressure and pain in his upper abdominal area you mentioned?

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Profile picture for Lisa Lucier, Moderator @lisalucier

@plantlady9 - how is your husband doing? How is the constant pressure and pain in his upper abdominal area you mentioned?

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@lisalucier the condition has not changed. Gotten worse because he can’t sleep much, so other issues are starting to arise.

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