Has anyone been exposed to diethylstilbestrol (D.E.S) in utero?

Posted by marys1956 @marys1956, Aug 31, 2022

Has anyone here been exposed to DES while in-utero? My mom was prescribed it in the 1950’s. I’ve had a hysterectomy, cervical cancer, vaginal cancer (now returned).

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

Profile picture for kmfdallas @kmfdallas

That is, it. Also, DES Info Association has published a pamphlet "Caring for the Diethylstilbestrol Exposed Patient". This pamphlet includes research articles and the various needs of the DES exposed. Designed as a resource for the DES exposed and to give to physicians caring for the DES Exposed. Are you interested in this?

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Yes, I would be interested. Can it be printed off the website?

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Profile picture for Teresa, Volunteer Mentor @hopeful33250

Yes, I would be interested. Can it be printed off the website?

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email me and I will send it to you.

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Profile picture for kmfdallas @kmfdallas

That is, it. Also, DES Info Association has published a pamphlet "Caring for the Diethylstilbestrol Exposed Patient". This pamphlet includes research articles and the various needs of the DES exposed. Designed as a resource for the DES exposed and to give to physicians caring for the DES Exposed. Are you interested in this?

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@kmfdallas, if you have a digital copy of the pamphlet, for example as a pdf, you can attach it to your message.

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Where is the section to attach a pdf?

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Profile picture for kmfdallas @kmfdallas

Where is the section to attach a pdf?

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When you pull up the "Reply" screen, you will see a grey box at the bottom that says: "Add Photo/Files (Optional). Just click on that, and it will allow you to attach a PDF.

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Profile picture for Teresa, Volunteer Mentor @hopeful33250

When you pull up the "Reply" screen, you will see a grey box at the bottom that says: "Add Photo/Files (Optional). Just click on that, and it will allow you to attach a PDF.

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"Add Photo/Files (Optional)" Do not see this

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Profile picture for kmfdallas @kmfdallas

"Add Photo/Files (Optional)" Do not see this

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Ok, let's try it this way:

Click on the blue box that says "Reply"
A blank box will appear for a message
At the bottom of the blank box you should see a "grey box" with the words: Add Photo/Files (opetional)
Try this and let me know if you see it.

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Profile picture for kmfdallas @kmfdallas

"Add Photo/Files (Optional)" Do not see this

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@kmfdallas, as a new member, you will be able to add files in a few days. cc @hopeful33250

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Profile picture for Teresa, Volunteer Mentor @hopeful33250

When you pull up the "Reply" screen, you will see a grey box at the bottom that says: "Add Photo/Files (Optional). Just click on that, and it will allow you to attach a PDF.

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This is the DES Pamphlet Caring for the Diethylstilbestrol exposed patient published by DES Info Association

Shared files

Caring for the Diethylstilbestrol Exposed Patient Pamphlet April 1 2024 Update (Caring-for-the-Diethylstilbestrol-Exposed-Patient-Pamphlet-April-1-2024-Update-.pdf)

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