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New diagnosis

Prostate Cancer | Last Active: Oct 22 8:48pm | Replies (28)

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My husband has T3a with focal tiny EPE , gleason 9 after surgery , Cribriform and IDC. He has no inherited mutations. He had surgery about 6 weeks ago and we immediately panicked about findings but had hard time making app. with MO and RT at our hospital. Urologist suggested waiting for PSA that he ordered for November (?!) but we insisted having PSA checked next week and succeeded getting that order. We talked with RO just the other day finally and he suggested that we wait to see that first PSA and than go forward from there. He was not opposed to adjuvant but thinks that it is better to wait for complete continence and healing of that area. At this point we can do just one step at the time and PSA being the first step. If it comes positive, he will order PSMA also. If non detectable than we can have short term ADT and RT but will have to weight pros and cons regarding continence, toxicity etc. At this point incontinence is really minor , about 25 ml in 24 hours - that is really minimal ( it is equivalent to 5 teaspoons ) but it would be nice to have it gone before RT.
Wishing you all the best and I wish I have better answers for you, we are still scrambling and have very little direction and have to research and make decisions on our own. It would be nice to hear from somebody who has a better team and perhaps even has treatment at hospital with "tumor board" and got very good plan and explanation about what is the best approach 😔.

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Replies to "My husband has T3a with focal tiny EPE , gleason 9 after surgery , Cribriform and..."

I had about the same, Gleason 9, extra-prostatic extension, and a detectable PSA after surgery. My PSA has been slowly climbing since surgery 17 months ago.
I am not panic stricken. I am 62 years old. I am in good health. I realize that my PSA is climbing, but there are treatments, and I still believe I can be cured. I had no seminal vesicle invasion, no lymph node involvement, and no metastasis. It appears to be localized. I was diagnosed T3a.
My plan is to tread carefully, not panicking, and strike when I know what I am swinging at. With very low PSA (mine is .06) it is doubtful anything will show on a PSMA PET. There is always a possibility that the cancer is some place other than my prostate bed, so I am hesitant to irradiate that for no reason as there are consequences to treatment.
My advice is to catch your breath. Think before treatments. Consider what your team suggests. Ask questions, and do your research. Good luck