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Living in chronic pain

Chronic Pain | Last Active: 2 days ago | Replies (58)

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Hi Archie Here.. tough day today— it’s hard to even consider 1 at a time, but life is lived 1 step in front of the other. Weeks go by and I look around and think, jeez, I made another month.
My AdhesiveArachnoiditis is now rapidly progressing. I didn’t know it could until I talked with the head of Neurology at Mayo earlier this year. He added that I should not expect the intrathecal pump to cover the increase in pain. Truth is, I’m having trouble dealing with the pain increase. I can feel myself getting weaker because of lack of movement and exercise. I just read about exercising THROUGH THE PAIN… I’m now 80 and for the first time I’m doubting my ability to do what’s right and necessary to stay functional and have a good quality of life. Strangely, it’s not depression, it’s the ragged rat of reality staring me in the face. Is this an inflection point where my body is not able to overcome challenges or unable to rise to meet requirements?? We‘ll find out. I haven’t given up, but I’m trying to articulate my physical/mental challenges just now.
Be well all… Archie

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Replies to "Hi Archie Here.. tough day today— it’s hard to even consider 1 at a time, but..."

Hi Archie,
I hear you, and understand how hard this is. Living with chronic pain for so long takes an immense toll, and it’s completely understandable that you’re feeling how you are. It’s a fight every day just to get by, and it’s okay to feel overwhelmed and tired.

Please know that your pain doesn’t define you, even when it feels like it takes up all the space. It’s just a part of the incredible life you’ve lived, full of experiences, memories, and love. All of those things are still there, even on the hardest days.

If you can, try to find a single, tiny moment of peace in each day. These little moments don’t erase the pain, but they can be a gentle reminder of the world beyond it.

You are not alone in this, utilise the support of the healthcare professionals. Your strength is immeasurable, and it’s a profound act of courage just to keep going. Be kind to yourself and never feel like you have to be anything but exactly where you are.
Take care and take it one step at a time. 🙂