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New pNET so scared

Neuroendocrine Tumors (NETs) | Last Active: 4 days ago | Replies (18)

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Thank you for sharing your journey and the encouragement. I hope you are disease free now. I live in Toronto and the wait time for specialist is long. Mine was booked in 2 month. And I don’t know how long I need to wait for the surgery. How fast did you get the surgery done and did the tumor grow during waiting?

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Replies to "Thank you for sharing your journey and the encouragement. I hope you are disease free now...."

Hello @awu99 and welcome to Mayo Connect. I see that you are early in your diagnosis with pNET. Was your pNet diagnosed through a scan or biopsy? I know that waiting to see a specialist is a difficult wait and we would want it to be sooner. Do you have an appointment scheduled with the surgeon?

Share, as you are comfortable, how you are feeling and what symptoms led to this diagnosis.

I believe Canadian medical care is different from American My tumor was found in July, meet my surgeon in August (had additional tests until surgery) . Grade 1 stage 2. I only needed surgery —no chemo or radiation.
Strength being sent your way. Hopefully before you know it, it will be over