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I don't always look at posting date either , sorry about that. I am so with you all with NTM and Bronchietasis.. The exhaustion is something people don't understand, especially the doctors. I am not on any MAC meds right now as I have been that route with very little improvement and bad side effects in 2020. Housework, meal prep , errands I cannot hardly do any more. Working full time yet takes absolutely all my energy until I turn 64 when I can then resign my position and be comfortable enough to pay for my own health insurance , but I rely on my husband for all of the day to day housekeeping tasks right now. So sad so many of us are in this position, but I have hope. Mayo Clinic Connect is a life line for many of us to share our experiences and gain tidbits of valuable knowledge.
Replies to "I don't always look at posting date either , sorry about that. I am so with..."
This really means a great deal ....it means he understands etc. " I rely on my husband for all of the day to day housekeeping tasks right now"........kudos to your husband.
It is not only the disease itself that zaps you of your energy it is also the nebulizing routine followed by the AC Breathing Techniques and then what can be a very trying period of huff coughing to get it all up and out.
The best to you both.
Barbara
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Yes indeed! Hope springs eternal! Glad you will be able to get to retirement but so sorry you are dealing with this. I could hardly put one foot in front of the other back in 2013 and 2014 so I knew something was wrong. Hence I retired at 64 instead of 65 which was interesting insurance wise with children. The Mayo connect family has been a godsend to so many people! Wishing you well. Irene5