May I add something? I had this monster for 14 years and the final cure was the an anti-seizure medication that was off label for an unrelated situation. I took it for 2 weeks and it was gone. When I told my pelvic therapist a year later she said, she had heard of that. Duh! Couldn't she mention it to me? The drug was Topamax. Check it out please. It makes sense.........it's the nerves and they could be in a spasm.