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New pNET so scared

Neuroendocrine Tumors (NETs) | Last Active: 4 days ago | Replies (18)

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In 2019 a 6mm PNET was found on the head of my pancreas. In October of 2019 I had surgery (best known as a Whipple). Here it is 2025 and I get screened every 6 months. My understanding Neuroendocrine tumors are slow growing. The best advice I can provide is find a surgeon and oncologist that is proficient in PNETS. Stay strong. It’s a long journey

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Replies to "In 2019 a 6mm PNET was found on the head of my pancreas. In October of..."

Thank you for sharing your journey and the encouragement. I hope you are disease free now. I live in Toronto and the wait time for specialist is long. Mine was booked in 2 month. And I don’t know how long I need to wait for the surgery. How fast did you get the surgery done and did the tumor grow during waiting?