← Return to Long Covid & IVIG anyone?

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SpicyKim avatar

Long Covid & IVIG anyone?

Post-COVID Recovery & COVID-19 | Last Active: Nov 23, 2025 | Replies (13)

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Profile picture for lowrymal50 @lowrymal50

Hey, yes I just started the IVIG treatments again 2 days ago. I feel for everyone. I have severe muscle aches, brain fog and I write everything down as well. I put a calendar on my fridge so I can write everything down. Using my phone calendar isn't enough. I have to see it everyday to remind me of the things I must do. I have been diagnosed with fibromyalgia, SFN,Severe anxiety, insomnia, muscle aches and headaches nearly everyday. I was on ivig infusions back in 2023 and my neurologist relocated and I went to his colleague and he stopped them all together. Of course I caught covd again and I found my old neurologist and went back to him who put me back on the Ivig infusions. It did take 6 months to get my insurance to approve them. But I had to do most of the work bc the doctors office just cant get it together. You have to be an advocate for yourself. My life has dramatically changed! I am so fatigued everyday and I dont want to do anything or go anywhere. I miss my family and my grandchildren. Its hard when u cannot see the illness and it eats u from the inside out. I am no longer the person I use to be. Good luck to all!!!

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Replies to "Hey, yes I just started the IVIG treatments again 2 days ago. I feel for everyone...."

I am walking in your shoes too..fatigue and shortness of breath has kept me from many of my grandkids games..can't walk far or climb steps...I've had this now 2 years..watching TV now is all I feel like doing...