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Have you tried the new Protocol 525 product for neuropathy relief?
I have used the original version of the Protocol 525 product (https://theprotocolworks.com/) since 2016. I have idiopathic small fiber peripheral neuropathy with the only symptom being numbness in both legs. When I started taking the protocol, the numbness was just below my knees. After 2 months, the numbness seems to be just above the ankles which is subjective on my part with no additional testing. I do feel it is a win-win for me as my neuropathy has not progressed like I was told it would by the neurologist. I have continued taking the protocol in hopes that it may continue to roll back the numbness symptoms. I have noticed some new feeling in my feet in the last 2 months. Some feeling has returned to me feet and they seem to feel better lately although I still have the numbness – hard to describe the difference.
The Protocol 525 is not a cure for neuropathy. It treats the pain and discomfort symptoms of neuropathy without the drugs which have their own side effects. Have you tried the Protocol 525 or the original protocol? Did it help? If yes, how? If no, please share.
Note: I have no commercial investment in the protocol and I am sharing this information as someone who has found some degree of relief using this combination of supplements. I also discussed these supplements with my Mayo primary care team before I started taking them. The care team sent them to the pharmacist for review who did not have any major concerns for me taking them.
*** Edited Oct 3, 2023 ***
For more information and a list of the ingredients, please see the frequently asked questions on the Protocol's website here - https://theprotocolworks.com/faq/.
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I might have thought the same had I not been a member of the original Facebook group when it first started out and we were all just a group of neuropathy patients looking for something that provided relief. The reviews are real people with various forms of neuropathy and members of the Facebook group. We maintained documents on the Facebook group of a list of the supplements we were taking along with research to support how they help neuropathy. One of the documents had a link to a manufacturer site or Amazon where we could purchase each of the supplements (about 12 or 13 different supplements at the time). Lots of us didn't like the fact that we were taking so many capsules daily.
The leader of the Facebook group had a connection with a local pharmaceutical company and worked with them to combine the different supplements into fewer capsules. The Facebook group members supported the effort with donations from members and pre-orders and the Protocol 525 was born as an LLC. The 525 is the first generation of the protocol and instead of renaming it to Protocol 424 when they reduced the number of capsule from 12 a day to 10 a day, I think they just decided to change it to the Protocol. They are now working on a liquid version which I'm hoping might show up next year and be more bioavailable.
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4 ReactionsThanks, John. I already take what seems like fifty pills already.LOL. Just what I need…another dozen or so pills. And, for only $190/month! What a deal. You are fortunate to not have any pain with your neuropathy.
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2 ReactionsThanks for the insight. Appreciate!
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1 ReactionThanks so much, @johnbishop,I appreciate the info. Will look into. Just wondering... are you experiencing any relief taking those many capsules every day?
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1 ReactionI have had some feeling in my feet come back but it’s really hard to compare to normal because I have to wear compression socks daily that squeeze the ever loving daylights out of my legs. That is due to also having lymphedema in my legs as well as the neuropathy.
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1 ReactionHow does one distinguish between PN and lymphadema? Although my legs don't appear to be swollen, I have this sensation of a lot of fluid built up in my calves. My skin feels tight, and when I swim (40 laps non-stop, 3 x week) I have the sensation that I'm wearing heavy boots on my feet. I'm a good swimmer, so it is not technique. I've taken to wearing OneCompress socks on my legs at night, which helps minimally. I also have regular (light) compression socks that provide some relief when things feel really bad. I've tried magnesium cream on my legs, which seems to do little for me. I have very painful leg cramps at night sometimes, which wakes me up. I've mentioned all this to my rheumatologist, but he hasn't offered any thoughts.
I had a lymphoscintigram done at Mayo Clinic which was when I was diagnosed with lymphedema in my legs - https://www.mayoclinic.org/diseases-conditions/lymphedema/diagnosis-treatment/drc-20374687. In addition to wearing the compression socks during the day, I use a moisturizing cream on the legs just because that's near where the peripheral nerves are and dry skin doesn't help. At night I elevate my feet a few inches which helps the swelling go down more during the night. I used to add a couple of folded blankets under the mattress but I ended up getting an adjustable bed which makes it a lot easier. Not sure if you've tried the search function but there are quite a few member discussions on leg cramps at night that might be helpful - https://connect.mayoclinic.org/search/?search=leg+cramps+at+night.
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3 ReactionsI need help please tell me what truly works or doesn’t work.
Due to feet neuropathy I have chronic pain that has gotten worse over time. I get this heaviness in my feet along with the shooting stabbing pain, numbness, feet falling asleep, tingling, and coldness to the feet. I can put on 2 pair of socks and my feet continue to be cold especially at bedtime. I had surgery on my left big toe in which the toe has not regained the original feeling. The toe is always cold and doesn’t feel like it’s a part of my body.
Hi @cadenz, Unfortunately I think the answer to your question is difficult for anyone to answer. It's just my personal opinion but I think what works for one person may not work for others. I also have neuropathy but don't have the pain symptoms, just the numbness and balance problems. I do wear loose fitting socks at night after rubbing a moisturizing lotion on my feet.
You might want to scan through the discussions where members mentioned cold feet what helps - https://connect.mayoclinic.org/search/discussions/?search=cold%20feet%20what%20helps. If you haven't already seen it, the Foundation for Peripheral Neuropathy has a list of complementary and alternative treatments - https://www.foundationforpn.org/therapies/.
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