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Surgery for thoracic outlet syndrome

Bones, Joints & Muscles | Last Active: Sep 21 12:50am | Replies (35)

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OK, I didn’t even read through everything that was transcribed on there. It is absolutely not and that you know done correctly. If you read it, you can probably obviously tell the long story short. I’m still trying to decide what to do when I went so when I went through the things with Mayo, the vascular doctor doctor along with other doctors that had to see to get certain things rolled out first we did a nerve block and they said if the nerve block worked it only last 12 hours, but if it worked if it helped that that would give them a better idea if the surgery is something that would be beneficial. When they did the nerve block, it was like an incredible how much more strength I had in my right hand. It was like I felt like I had a new hand for a minute, I wrote you know wrote down a few things Because prior to having this condition I was right you know I love to write notes, right hand write everything and I’m not able to do that now. In the same thing you know it was typing. It just messes up everything messes with daily everything anyhow so they decided it was the 70% success right if you will, if I were to follow through with the surgery, you know that that’s where it would be not to expect anything more than that. Also, maybe a background thing as well about 25 years ago 2025 years ago my owner nerve, I injured my ulnar nerve and my wrist and my elbow, and went to a orthopedic orthopedic clinic in the they like made. It seem like I had to have surgery you know like it was something major And at that time you know, I was just kind of listening to the doctor and let him do the surgery. I wish I could take that back because now that’s kind of plain into is it is it my ulnar nerve is that still being pinched or you know is that part of the equation? It’s just a whole mess wouldn’t which should upon our worst enemy and you know it’s just one of the several paths that of the House that I’m going down through. I apologize that everything probably does not make sense. I just encourage anyone to do as much research watch in the other get other doctors opinions prior to surgery. Also, I was diagnosed with connective tissue disorder, mayo, and that makes having the surgery even 100 times more scarier than than before. Yeah there’s a lot so and I know that everybody out there if you’re reading this, you have a lot going on as well, so I just wish everyone the best and I just I pray that for answers and to figure this out my kids and my parents are having to take care of me and it should be the other way around and it’s just I’m getting a very exhausting. I wanna be I want to. I just want my life back with my family. I know live life.

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Replies to "OK, I didn’t even read through everything that was transcribed on there. It is absolutely not..."

Hi, I am sorry you are going thru so much pain. Having connective tissue issues results in many co- morbidities unfortunately. TOS is stated very common in this population as well as many other. I would recommend Dr Donohue at MGH for a consult. He is very booked but I read he does telehealth consult for venous TOS cases. When I saw him this month finally, he said that many have surgeries when it’s not TOS and subclavian vein compression on abduction is normal where some think it’s a sign of TOS. Because I am dealing with another cervical issues and could not complete the Botox trial, my evaluation could not be completed but said that I do not have typical symptoms. One thing I found out though from CTA done there is that I have enthesopathy at c7/t1 as well which cause can cause irritation on my ulnar nerve in addition to C5/6 bone spur and disc bulge which probably were caused by c1 defect which congenitally is weak in supporting the skull. All this is causing my TOS like symptoms sometimes even tightens my lung from spasms. Since you mention extra rib that sounds like a sure TOS but since surgery cannot be undone and with connective tissue issues I believe it’s very difficult to predict results. To be honest lidocaine scalene block injection is not enough of predictor. Hope you can get an opinion from Dr Donohue.