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Ditto to Everyone before me. I too waited too long and crawled to Dr. Make sure exercise for body and mind. Suffering is not restful for body.
…..my Rehumy told me OTC Tylenol for Arthritis up to 6 pills a day was a good supplement To prednisone as I tapered. I’m now off prednisone and use T for A as needed with exercise and weather issues.
Ask your dr, abt Kevzara which helped me taper off prednisone and am now 95% most of the time. No side effects for me.
As long as I have had PMR, I force myself to get exercise everyday. Minimum a 2 mi walk. I have a Corrective Functional Movement Specialist, i,e, trainer/pt who keeps me moving.
With that said, she has been a HUGE help and my number one resource.
One of my drs sent me for Pool PT that was PT in a tank against jets which led me to pool walking which is easy on the body. I have taken advantage of Accupuncture, shock wave therapy, TVT (targeted vibration therapy). I have been throwing everything at the PMR except the kitchen sink. It has been a slooooowwwww road, by inches, with occasional big leaps. BTW: I do have problems with the weather, humidity dew point…..a trip to Alaska away from it and I was a new person.

So my answer is ask more questions, try more options.
DON’T give in!
PS: I am 79yo, 19months diagnosed PMR, golf, bike, hike, and all things outdoor.

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Replies to "Ditto to Everyone before me. I too waited too long and crawled to Dr. Make sure..."

Thank you to all. It's great to take this all in. All test show I don't have any red flags so it's impossible to confirm PMR. The rhumatolist said everything points to A-typical PMR. Which basicially means, even though no tests indicate PMR everything shouts you have PMR.